Meet Me Monday

Come meet the Soft Bones’ staff members, Region Leads, moderators, and volunteers that make our mission a reality. There are many individuals who work behind the scenes to bring patients resources, facilitate conversations and meet ups, and more. Get to know them here and on our various social media accounts, pages, and forums.

Meet Alex Lupo

Meet Alex Lupo Relationship to HPP: Before joining Soft Bones, I had never heard of it or met anyone with hypophosphatasia...

Meet Cindy Reasor

Meet Cindy Reasor Relationship to HPP: I have HPP. Both of my adult daughters and two granddaughters also have this...

Meet Lucy George

Meet Lucy George Relationship to HPP: I am the Patient Engagement Coordinator here at Soft Bones! Joined: I have been...

Meet Blynda Kellner

Meet Blynda Kellner Relationship to HPP: I was diagnosed with HPP around 6 months old. Joined: I found Soft Bones,...

Meet Margaret Robb

Meet Margaret Robb What is your relationship to HPP? I am the Communications Manager and Patient/Caregiver Navigator. I create content...

Meet Sue Krug

Meet Sue Krug Relationship to HPP: I am a patient with HPP. I have two mutations, one from each of...

Meet Charlene Waldman

Meet Charlene W. Relationship to HPP: I have worked in the rare bone disease field for many years serving as...

Meet Judith Harris

Meet Judith Harris Relationship to HPP: Region Lead for Northeast. I have been diagnosed with juvenile-onset HPP. Joined: May 2019....

Meet Nicole Belting

Meet Nicole Belting Relationship to HPP: Region Lead for Midwest 1 Joined: March of 2023. Last summer I hosted my...

Meet Denise Goodbar

Meet Denise Goodbar Relationship to HPP: Executive Director at Soft Bones Joined: March of 2015 What do you want the...