How to Fundraise on Facebook & Instagram
Looking for a simple way to make a meaningful impact on the hypophosphatasia (HPP) community? Creating a Facebook or Instagram fundraiser is one of the easiest ways to raise awareness, inspire support, and help provide critical resources for patients and families affected by HPP.
Start by sharing your story or personalizing one of our ready-to-use templates to make your fundraiser your own. Then, follow this guide for step-by-step instructions to quickly set up your fundraising post and start making a difference today.
Looking for a simple way to make a meaningful impact on the hypophosphatasia (HPP) community? Creating a Facebook or Instagram fundraiser is one of the easiest ways to raise awareness, inspire support, and help provide critical resources for patients and families affected by HPP.
Start by sharing your story or personalizing one of our ready-to-use templates to make your fundraiser your own. Then, follow this guide for step-by-step instructions to quickly set up your fundraising post and start making a difference today.
Sample Posts to Copy & Paste
Sample Post 1: Rare Disease Awareness Starts With Us!
I’m raising money for Soft Bones, the U.S. Hypophosphatasia Foundation, to support individuals and families affected by hypophosphatasia (HPP).
HPP is a rare genetic condition that affects bones and teeth, but many people have never heard of it. Raising awareness can help patients get diagnosed sooner and connect families to support. Your donation helps fund education, advocacy, patient programs, and community support for people living with HPP.
Please donate if you can and share this fundraiser to help spread awareness.
Every share matters! 💙
Sample Post 2: My Birthday Wish This Year
Instead of gifts, I’m asking friends and family to support Soft Bones and the hypophosphatasia (HPP) community. HPP is a rare metabolic bone disease that can cause chronic pain, fractures, fatigue, dental issues, mobility challenges, and more. Many families face years of misdiagnosis and uncertainty before finally getting answers.
Every dollar raised helps provide:
💙 Patient support, advocacy, and awareness efforts
💙 Community programs and educational resources
💙 Hope for people living with HPP
If you’re able, please consider donating or sharing my fundraiser.
Thank you for helping me make a difference for the HPP community!
#SoftBonesHPP #HPPCommunity #hypophosphatasia #RareDisease #BirthdayFundraiser
Sample Post 3: Why This Cause Matters to Me
I’m creating this fundraiser for Soft Bones because hypophosphatasia (HPP) has impacted my life/my family/my friends in ways many people don’t see.
Living with HPP can mean:
- Chronic pain
- Fatigue
- Fractures and bone issues
- Dental complications
- Feeling isolated in a rare disease journey
Organizations like Soft Bones help patients and caregivers feel less alone by providing education, support, and connection. If you can, please consider donating or sharing this fundraiser. Your support truly means so much. 💙
#SoftBonesHPP #RareDiseaseCommunity #Hypophosphatasia #HPP
Sample Post 4: Rare Disease Day
Did you know that today is Rare Disease Day? On this day, families like mine, affected by rare diseases, gather in various ways to raise awareness.
Rare diseases affect 1 in 10 Americans, and 72% of them are genetic. For many living with a rare disease such as hypophosphatasia (HPP), the journey can be lonely and isolating. Together, through sharing our own stories and experiences, we realize we aren’t the only ones.
To recognize Rare Disease Day, I’m fundraising for Soft Bones to help support people living with hypophosphatasia. Please help me reach my fundraising goal by donating or sharing this post. Together, we can make a difference for the rare disease families everywhere.
#SoftBonesHPP #Hypophosphatasia #RareDisease
Sample Post 5: October 30th is World HPP Day
To recognize World HPP Day, I’m fundraising for Soft Bones the patient advocacy group for Hypophosphatasia to help support people living with hypophosphatasia.
Many individuals with HPP spend years searching for answers before receiving a diagnosis. By raising awareness & supporting the HPP community, we can help patients feel seen, heard, and supported.
Please help me reach my fundraising goal by donating or sharing this post. Together, we can make a difference for rare disease families everywhere.
#SoftBonesHPP #Hypophosphatasia #RareDisease
Sample Post 6: Quick & Simple Fundraiser Caption
💙 I’m fundraising for Soft Bones to support the hypophosphatasia (HPP) community!
Every donation helps provide education, support, advocacy, and hope for families affected by this rare disease. Please consider donating or sharing!
#SoftBonesHPP #Hypophosphatasia #RareDisease
How to Host a Facebook or Instagram Fundraiser
Hosting a Facebook or Instagram fundraiser is fairly simple. Follow these steps to add a fundraising button to any post or Instagram bio. Pay attention to which social media platform and device you are using, as this will affect which set of instructions you will need to follow.
Facebook Steps (Mobile)
1. Create a new post, and tap “Fundraiser” in the menu. You’ll need to scroll right.
2. Search for “Soft Bones, the US Hypophosphatasia Foundation” and select it.
3. Use one of our sample posts or writer your own, then publish it!
Facebook Steps (PC)
1. Create a new post, and tap the three dots in the right hand corner.
2. Select “Raise money”, and search “Soft Bones”.
3. Use one of our sample posts or writer your own, then publish it!
Facebook Page (Mobile)
- Search Fundraiser in the search bar.
- Click Select Fundraisers.
- Select Create Fundraiser, then search for “Soft Bones”.
- Select Soft Bones, Inc., The US Hyposphosphatasia Foundation.
- Edit your fundraiser page to match your goals and tell your story.
- Click Create when you are ready to publish and start fundraising.
- Invite your friends and family to donate! You must invite them first before they can access your page.
Facebook Page (PC)
- Search Fundraiser in the search bar.
- Click Select Nonprofit, then search for “Soft Bones”.
- Select Soft Bones, Inc., The US Hyposphosphatasia Foundation.
- Edit your fundraiser page to match your goals and tell your story.
- Click Create when you are ready to publish and start fundraising.
- Invite your friends and family to donate! You must invite them first before they can access your page.
Instagram Steps (Iphone)
1. Press + to create a post, and choose an image
2. Scroll down to “More options” and tap it.
3. Tap “Add fundraiser”.
4. Search for “Soft Bones” and tap ‘softboneshpp’.
5. Edit fundraiser details, such as goal, title, etc.
6. Use sample posts for your post’s text
or write your own fundraiser text, then press post & publish it!
Instagram Steps (Android)
- Tap
Create in the top left or swipe right anywhere in feed.
- Create or choose your image and tap Next.
- Crop and filter your post, and then tap Next.
- Tap More Options, then tap Add fundraiser.
- Select Soft Bones, Inc., The US Hyposphosphatasia Foundation.
- Tap Edit fundraiser to go to the “Fundraiser Details” page.
- Enter the details for your fundraiser and then tap Done.
- Tap Share.
Some Tips & Tricks
Tell your story or why you chose to create a fundraiser.
Add photos to your fundraising post.
Share with your inner circle of family & friends first to gain momentum.
Invite friends and families to like and follow your Facebook fundraiser to increase reach.
If you initially created a fundraiser on Facebook, you can link your Facebook fundraiser to your Instagram profile. When someone taps the Donate button on your Instagram profile, they’ll be directed to your fundraiser on Facebook.