Region Lead Program

Region Lead Program

The Soft Bones Region program provides localized support to a growing and geographically dispersed HPP community. Region leads are attentive to patient needs and provide multiple contact points throughout the year to connect with HPP members through chats and local meet-ups. Region Leads will also spearhead grassroots awareness, fundraising and policy efforts at the local level. 

Hover over the map to identify your Region and meet your Region Leads based on where you live below. 

Meet Your Region Leads!

Northeast Region

Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, or Virginia? Meet your Region Leads, Chris D. and Judith H.!

Southeast Region

Do you live in Alabama, Florida, Georgia, Mississippi, North Carolina, South Carolina, and Tennessee? Meet your Region Leads, Blynda K. and Scott G.!

Midwest 1 Region

Do you live in Illinois, Indiana, Iowa, Minnesota, or Wisconsin? Meet your Region Leads, Cindy R. and Nicole B.!

Midwest 2 Region

Do you live in Kentucky, Michigan, Ohio, or West Virginia? Meet your Region Leads, Sharon T. and Nichole M.!

Central Region

Do you live in Arkansas, Colorado, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, South Dakota, or Wyoming? Meet your Region Leads, Susan B., Lindsey W., Nellie S., and Kara S.!

South Central Region

Do you live in Louisiana or Texas? Meet your Region Leads, Cami R. and Cassandra S.!

Northwest Region

Do you live in Alaska, Idaho, Montana, Northern California, Oregon, or Washington?
Meet your Region Leads, Ann H. and Hayley T.!

Southwest Region

Do you live in Arizona, Hawaii, Nevada, New Mexico, Southern California, or Utah? Meet your Region Leads, Amy B. and Sue K.!

Upcoming Events

Today

Appy Hour

Online

The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…

HPP AND ME Live Zoom Chat

Online

Register for your spot today! Join us on November 21st at 1 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and…

3rd Annual Denim and Diamonds Fundraiser – SAVE THE DATE

Harvest Hall at Alstede Farms 100 Rte 24, Chester, United States

Save the Date!   Join us for our 3rd Annual Soft Bones Denim and Diamonds fundraiser at Harvest Hall in Chester, NJ.   Date: Saturday,…

2025 National Patient Meeting – SAVE THE DATE

Great Wolf Lodge (Williamsburg, VA) 549 E Rochambeau Dr, Williamsburg, VA, United States

Save the Date!   Join us for the 2025 National Patient Meeting in Williamsburg, VA. This important event will bring together HPP community members to…