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UID:14480-1781553600-1781557200@softbones.org
SUMMARY:TAC Meeting: TAC Art Night June15\, 2026 at 8 PM Eastern
DESCRIPTION:🚨 RSVP Needed for next TAC session🚨  \n  \nCalling all Teen Advisory Council members! Join us on June 15th at 8 PM Eastern for our next TAC night. Please RSVP to the email or respond to our text message by June 5th so we can send your painting supplies in time\, and reply to our email to secure your spot and supplies! \n  \nInterested in joining TAC? Fill out the form\, HERE. TAC is sponsored in part by Alexion\, AstraZeneca Rare Disease.
URL:https://softbones.org/event/tac-meeting-tac-art-night-june15-2026-at-8-pm-eastern/
LOCATION:Online
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DTSTART;TZID=America/New_York:20260618T200000
DTEND;TZID=America/New_York:20260618T210000
DTSTAMP:20260513T152136Z
CREATED:20260513T152136Z
LAST-MODIFIED:20260513T152136Z
UID:14233-1781812800-1781816400@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat - June 18th at 8 PM Eastern
DESCRIPTION:Register for your spot today! \n\n\nJoin us on June 18th at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share your experiences with HPP. Registration is required. We hope to see you there! \nClick here to register.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-june-18th-at-8-pm-eastern/
LOCATION:Online
ORGANIZER;CN="Cindy R.":MAILTO:cindy@softbones.org
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DTSTART;TZID=Australia/Melbourne:20260621T200000
DTEND;TZID=Australia/Melbourne:20260621T210000
DTSTAMP:20260618T142834Z
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UID:14662-1782072000-1782075600@softbones.org
SUMMARY:Australia Zoom Chat - June 21st at 8 PM Melbourne
DESCRIPTION:Calling all HPPers living in Australia! \nWant to understand better NDIS and how it could support you or a loved one living with HPP? \nJoin Soft Bones Australia for a special live Zoom Meeting on June 21\, 2026\, at 8 PM (Melbourne time)\, focused on navigating the National Disability Insurance Scheme (NDIS). Whether you’re new to the program or looking for guidance on the application process\, this session will help you learn about eligibility\, support\, and services provided\, and how a plan can meet your needs. \nBring your questions and connect with others in the Australian HPP community during this informative and interactive discussion. This event is exclusively for individuals living in Australia. Registration is required. \nPlease reserve your spot: HERE! \nVisit the NDIS website to learn more: https://www.ndis.gov.au/
URL:https://softbones.org/event/australia-zoom-chat-june-21st-at-8-pm-melbourne/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20260626T140000
DTEND;TZID=America/Halifax:20260627T170000
DTSTAMP:20260618T151311Z
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UID:13744-1782482400-1782579600@softbones.org
SUMMARY:2026 National Patient Meeting - Registration is Now Closed
DESCRIPTION:Registration is now closed for the 2026 National Patient Meeting. \nTaking place on June 26-27 in Chattanooga\, TN\, this is an informative gathering where individuals and families affected by HPP can connect\, share experiences\, and learn directly from leading experts in HPP. Check out our agenda for an overview of the planned events and speakers. \nRegistration is closed\, but you can reach out to Cindy for more information or questions. \nThis meeting is sponsored in part by:  \nHeadline Sponsor: \n \n  \nChampion Sponsorship: \n \nCommunity Builder:
URL:https://softbones.org/event/2026-national-patient-meeting-save-the-date-copy/
LOCATION:Chattanoogan Hotel\, 1201 Broad St\, Chattanooga\, TN\, 37402
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