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X-WR-CALDESC:Events for Soft Bones
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UID:14148-1778616000-1778619600@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat - May 12th at 8 PM Eastern
DESCRIPTION:Register for your spot today! \n\n\nJoin us on May 12th at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share your experiences with HPP. Registration is required. We hope to see you there! \nClick here to register.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-may-12th-at-8-pm-eastern/
LOCATION:Online
ORGANIZER;CN="Cindy R.":MAILTO:cindy@softbones.org
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BEGIN:VEVENT
DTSTART;TZID=America/Denver:20260517T110000
DTEND;TZID=America/Denver:20260517T140000
DTSTAMP:20260610T072021
CREATED:20260309T181711Z
LAST-MODIFIED:20260421T125031Z
UID:13943-1779015600-1779026400@softbones.org
SUMMARY:Join Us for a Northwest In-Person Region Meeting- May 17\, 2026 at 11 AM Pacific Time
DESCRIPTION:Registration is now open! 🎉 \nDo you live in Alaska\, Idaho\, Montana\, Northern California\, Oregon\, or Washington? \nJoin us in Penn Valley\, CA! \nNorthwest Region Leads\, Scarlett P. and Haley T.\, will host an in-person luncheon on May 17\, 2026\, from 11 AM-2 PM Pacific Time. Catch up with your Region Leads and connect with others in your area. Lunch will be provided. \nRegistration is required and will close on May 3\, 2026. Register HERE. \nRemember to join the HPP AND ME Northwest Forum: HERE. \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease.
URL:https://softbones.org/event/join-us-for-a-northwest-in-person-region-may-17-2026-at-11-am-pacific-time/
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DTSTART;TZID=America/New_York:20260521T190000
DTEND;TZID=America/New_York:20260521T200000
DTSTAMP:20260610T072021
CREATED:20260428T140203Z
LAST-MODIFIED:20260428T140203Z
UID:14177-1779390000-1779393600@softbones.org
SUMMARY:Join Us for a Midwest 2 Region Zoom Meeting on May 21\, 2026 at 7 PM Eastern
DESCRIPTION:Do you live in Kentucky\, Michigan\, Ohio\, or West Virginia? \nJoin Region Leads Nichole M. & Jennifer W. for a Zoom Meeting on May 21\, 2026\, at 7 PM Eastern. All Midwest 2 Region patients and caregivers are welcome to connect and chat.  \n📅 Registration is required. Be sure to reserve your spot HERE! \nOnce you register\, you will receive the Zoom join link directly via email from Zoom. We’d love to see you there! \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease.
URL:https://softbones.org/event/join-us-for-a-midwest-2-region-zoom-meeting-on-may-21-2026-at-7-pm-eastern/
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260528T190000
DTEND;TZID=UTC:20260528T200000
DTSTAMP:20260610T072021
CREATED:20260506T165938Z
LAST-MODIFIED:20260506T174950Z
UID:14208-1779994800-1779998400@softbones.org
SUMMARY:HPP AND ME UK Live Zoom Chat - May 28th at 7 PM GMT
DESCRIPTION:Calling all UK members! \nAsh F. and Meryl C. are hosting a UK HPP AND ME Zoom Chat on Thursday\, May 28th at 7 PM GMT. This is the perfect time to learn more about your local support system and connect with others in the area. We’d love to see you there! \nRegistration is required. Please register HERE. \nPlus\, don’t forget to join the HPP AND ME UK Forum for the latest updates below: HERE
URL:https://softbones.org/event/hpp-and-me-uk-live-zoom-chat-april-21-2026-at-7-pm-gmt-copy/
LOCATION:Online
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