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X-WR-CALDESC:Events for Soft Bones
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BEGIN:VEVENT
DTSTART;TZID=America/Denver:20260302T190000
DTEND;TZID=America/Denver:20260302T200000
DTSTAMP:20260507T060744
CREATED:20260209T134237Z
LAST-MODIFIED:20260209T134237Z
UID:13815-1772478000-1772481600@softbones.org
SUMMARY:Join Us for a Northwest Region Zoom Chat - March 2\, 2026
DESCRIPTION:Calling all HPP members from Alaska\, Idaho\, Montana\, Northern California\, Oregon\, or Washington? \n  \nJoin Region Leads\, Haley T. & Scarlett P.\, for a Zoom Chat on March 2\, 2026\, at 7 PM Pacific Time. All Northwest Region patients and caregivers are welcome to connect and chat.  \n  \nRegistration is required. Please register HERE. Once you register\, you will receive the Zoom join link directly via email from Zoom. We’d love to see you there! \n  \nRemember to join the HPP AND ME Northwest Forum: HERE.
URL:https://softbones.org/event/join-us-for-a-northwest-region-zoom-chat-march-2-2026/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260305T200000
DTEND;TZID=America/Chicago:20260305T210000
DTSTAMP:20260507T060744
CREATED:20260203T155752Z
LAST-MODIFIED:20260203T161354Z
UID:13791-1772740800-1772744400@softbones.org
SUMMARY:Join Us for an Southeast Region Zoom Chat - March 5\, 2026
DESCRIPTION:Calling all HPP members from Alabama\, Florida\, Georgia\, Mississippi\, North Carolina\, South Carolina\, or Tennessee? \n  \nJoin Region Leads\, Blynda K. and Tess O.\, for a Zoom Chat on March 5\, 2026\, at 7 PM Central/ 8 PM Eastern. All Southeast Region members and families are welcome to learn more about your local HPP support system and connect with fellow HPP families! \n  \nRegistration is required. Please register: HERE. \nHPP AND ME Southeast Forum: HERE \n  \nAfter registering\, you will receive the Zoom join link directly via email from Zoom. We’d love to see you there!
URL:https://softbones.org/event/join-us-for-an-in-person-southeast-zoom-region-meeting-march-5-2026/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260318T120000
DTEND;TZID=America/New_York:20260318T130000
DTSTAMP:20260507T060744
CREATED:20260310T131751Z
LAST-MODIFIED:20260318T133815Z
UID:13945-1773835200-1773838800@softbones.org
SUMMARY:New Patient Orientation Meeting - March 18\, 2026 at 12 PM Eastern
DESCRIPTION:  \n\nCalling all new HPP patients and individuals new to Soft Bones. Please join us for our New Patient Orientation on March 18th at 12 PM Eastern for a virtual Zoom meeting. \nThis is an opportunity to meet some of our team\, hear about our HPP resources\, learn about our programs\, and much more! \n\nPlease contact us HERE\, to learn more and register.
URL:https://softbones.org/event/new-patient-orientation-meeting-march-18-2026-at-12-pm-eastern/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260318T200000
DTEND;TZID=America/New_York:20260318T210000
DTSTAMP:20260507T060744
CREATED:20260305T182731Z
LAST-MODIFIED:20260318T133837Z
UID:13862-1773864000-1773867600@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat - March 18\, 2026 at 8 PM Eastern
DESCRIPTION:Register for your spot today! \n\n\nJoin us on March 18\, 2026\, at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share your experiences with HPP. Registration is required. We hope to see you there! \nClick here to register.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-march-18-2026-at-8-pm-easter/
LOCATION:Online
ORGANIZER;CN="Cindy R.":MAILTO:cindy@softbones.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260323T200000
DTEND;TZID=America/New_York:20260323T210000
DTSTAMP:20260507T060744
CREATED:20260217T131935Z
LAST-MODIFIED:20260225T230238Z
UID:13846-1774296000-1774299600@softbones.org
SUMMARY:TAC Meeting: Guided Art Session March 23\, 2026 at 8 PM Eastern
DESCRIPTION:🚨 RSVP Needed for TAC Art Session 🚨  \n  \nCalling all Teen Advisory Council members! \n  \nJoin us on March 23rd at 8 PM Eastern for our TAC Art Night. Please RSVP by February 20th so we can send your painting supplies in time\, and reply to our email to secure your spot and supplies! \n  \nInterested in joining TAC? Fill out the form\, HERE. TAC is sponsored in part by Alexion\, AstraZeneca Rare Disease.
URL:https://softbones.org/event/rsvp-needed-for-next-tac-meeting-art-session-march-2-2026-at-8-pm-eastern/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260324T150000
DTEND;TZID=UTC:20260324T160000
DTSTAMP:20260507T060744
CREATED:20260320T160745Z
LAST-MODIFIED:20260320T160745Z
UID:14027-1774364400-1774368000@softbones.org
SUMMARY:HPP AND ME UK Live Zoom Chat - March 24\, 2026
DESCRIPTION:Attention all UK HPP members! \nAsh F. and Meryl C. are hosting an HPP AND ME Zoom Chat for all patients\, caregivers\, and families living in the UK on March 24\, 2026\, 8 PM GMT (Greenwich Mean Time). We’d love to see you there! \nRegistration is required. Please register HERE. \nJoin the HPP AND ME UK Forum: HERE
URL:https://softbones.org/event/hpp-and-me-uk-live-zoom-chat-march-24-2026/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260325T190000
DTEND;TZID=America/New_York:20260325T210000
DTSTAMP:20260507T060744
CREATED:20260323T191625Z
LAST-MODIFIED:20260323T191952Z
UID:14038-1774465200-1774472400@softbones.org
SUMMARY:STRENSIQ Perspectives - March 25\, 2026
DESCRIPTION:Gain a new perspective on navigating treatment with STRENSIQ! \n  \nJoin Alexion\, AstraZeneca on March 25th at 7 PM Eastern for a virtual meeting. Learn more about STRENSIQ from an experienced HPP healthcare provider\, HPP patient\, or caregiver\, and OneSource™ Case Manager. Registration is required. Please register below. https://strensiq.com/events \n  \nRegistration before the event is required to receive a link to the webinar. Register HERE. \n \n  \n 
URL:https://softbones.org/event/strensiq-perspectives-march-25-2026/
LOCATION:Online
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