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X-WR-CALDESC:Events for Soft Bones
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DTSTART;TZID=America/Halifax:20250908T190000
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DTSTAMP:20260419T123116
CREATED:20250822T114641Z
LAST-MODIFIED:20250903T180426Z
UID:12667-1757358000-1757361600@softbones.org
SUMMARY:Join Us for a Northeast Zoom Chat - September 8\, 2025 at 7 PM Eastern
DESCRIPTION:Do you live in Connecticut\, DC\, Delaware\, Maine\, Maryland\, Massachusetts\, New Hampshire\, New Jersey\, New York\, Pennsylvania\, Rhode Island\, Vermont\, or Virginia? \nJoin Northeast Region Leads for a Zoom Chat on Monday\, September 8th at 7 PM Eastern. This is a great opportunity to meet and catch up with fellow members from your region. We hope to see you there! \nRegistration is required. Please register below. \nThe Region Lead Program is sponsored in part by Alexion\, AstraZeneca Rare Disease.
URL:https://softbones.org/event/join-us-for-a-northeast-zoom-chat-september-8-2025-at-7-pm-eastern/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250923T200000
DTEND;TZID=America/Halifax:20250923T210000
DTSTAMP:20260419T123116
CREATED:20250903T175702Z
LAST-MODIFIED:20250903T175843Z
UID:12729-1758657600-1758661200@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat - September 23\, 2025
DESCRIPTION:Register for your spot today! \n\n\nJoin us on September 23\, 2025\, at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share your experiences with HPP. Registration is required. We hope to see you there! \nClick here to register.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-september-23-2025/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250924T190000
DTEND;TZID=America/Halifax:20250924T200000
DTSTAMP:20260419T123116
CREATED:20250903T180222Z
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UID:12731-1758740400-1758744000@softbones.org
SUMMARY:HPP Empowered: September 24\, 2025 at 7:00 PM Eastern
DESCRIPTION:Have you or a loved one been diagnosed with hypophosphatasia (HPP)? \nJoin Alexion Pharmaceuticals\, Inc. as they host their HPP Empowered virtual educational event on Wednesday\, September 24\, 2025\, at 7:00 PM ET. \nRegister HERE. \n\n\nPresented by Alexion AstraZeneca Rare Disease.
URL:https://softbones.org/event/hpp-empowered-september-24-2025-at-700-pm-eastern/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250929T100000
DTEND;TZID=America/Halifax:20250929T180000
DTSTAMP:20260419T123116
CREATED:20241231T002204Z
LAST-MODIFIED:20250928T160823Z
UID:11416-1759140000-1759168800@softbones.org
SUMMARY:17th Annual Golf Classic and 2nd Annual Pickleball Tournament- Day of Play
DESCRIPTION:Registration for the 17th Annual Soft Bones Golf Classic and 2nd Annual Pickleball Classic is now closed. If you are attending golf or pickleball\, below\, you will find the day of play details. Please contact Jessica at Jessica@SoftBones.org for any questions or concerns. \n  \nGolf Day of Play: HERE \nPickleball Day of Play: HERE \n  \nWhether you’re teeing off\, playing pickleball\, or cheering from the sidelines\, your presence and generosity amplify hope for families battling HPP. \nThank you to Atlantic Health System for being our tournament sponsor.
URL:https://softbones.org/event/17th-annual-golf-classic-and-2nd-annual-pickleball-classic-save-the-date/
LOCATION:Somerset Hills Country Club\, 180 Mine Mount Rd\, Bernardsville\, New Jersey\, 07924
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