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X-WR-CALDESC:Events for Soft Bones
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250811T130000
DTEND;TZID=America/New_York:20250811T140000
DTSTAMP:20260419T145512
CREATED:20250527T161655Z
LAST-MODIFIED:20250527T161655Z
UID:12160-1754917200-1754920800@softbones.org
SUMMARY:New Patient Orientation Meeting - August 11\, 2025
DESCRIPTION:Calling all new HPP patients and individuals new to Soft Bones. Please join us for our New Patient Orientation on August 11th at 1 PM Eastern for a virtual Zoom meeting. \nThis is an opportunity to meet some of our team\, hear about our HPP resources\, learn about our programs\, and much more! \n\nPlease contact us HERE\, to register.
URL:https://softbones.org/event/new-patient-orientation-meeting-august-11-2025/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250820T190000
DTEND;TZID=America/New_York:20250820T210000
DTSTAMP:20260419T145512
CREATED:20250729T173711Z
LAST-MODIFIED:20250729T173727Z
UID:12487-1755716400-1755723600@softbones.org
SUMMARY:STRENSIQ Perspectives - August 20\, 2025
DESCRIPTION:Gain a new perspective on treatment! \n  \nJoin Alexion\, AstraZeneca on August 20th at 7:00 PM Eastern for a virtual meeting on STRENSIQ. Attendees will have the opportunity to learn from an experienced HPP healthcare provider\, HPP patient or caregiver\, and OneSourceTM. \n  \nRegistration before the event is required to receive a link to the webinar. Register HERE. \n  \n  \n  \n 
URL:https://softbones.org/event/strensiq-perspectives-june-10-2025-copy/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250828T130000
DTEND;TZID=America/New_York:20250828T140000
DTSTAMP:20260419T145512
CREATED:20250815T151045Z
LAST-MODIFIED:20250815T151045Z
UID:12644-1756386000-1756389600@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat - August 28\, 2025
DESCRIPTION:Register for your spot today! \n\n\nJoin us on August 28\, 2025\, at 1 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share your experiences with HPP. Registration is required. We hope to see you there! \nClick here to register.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-august-28-2025/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250830T100000
DTEND;TZID=America/New_York:20250830T140000
DTSTAMP:20260419T145512
CREATED:20250708T180350Z
LAST-MODIFIED:20250805T154717Z
UID:12313-1756548000-1756562400@softbones.org
SUMMARY:Join Us for an In-Person Southeast Region Meeting - August 30\, 2025
DESCRIPTION:Calling all HPP members from Alabama\, Florida\, Georgia\, Mississippi\, North Carolina\, South Carolina\, and Tennessee. \n  \nMeet us in Kissimmee\, FL! \n  \nJoin Southeast Region Lead\, Scott G.\, for an in-person meeting on Saturday\, August 30\, 2025\, from 10 AM – 2 PM Eastern. Connect with fellow HPP members\, share stories\, and learn more about our programs. Deana Brown\, OneSource Case Manager\, will be available to answer questions and engage in conversations. Lunch will be provided. \n  \nRegistration is required and will close on August 16\, 2025. Register HERE. \n  \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease. If you have any questions\, please reach out to Cindy@SoftBones.org.
URL:https://softbones.org/event/join-us-for-an-in-person-southeast-region-meeting-august-31-2025/
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