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X-WR-CALDESC:Events for Soft Bones
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250412T120000
DTEND;TZID=America/Chicago:20250412T140000
DTSTAMP:20260426T112503
CREATED:20250321T202947Z
LAST-MODIFIED:20250404T165740Z
UID:11771-1744459200-1744466400@softbones.org
SUMMARY:Join Us for an In-Person Northeast Region Meeting
DESCRIPTION:Do you live in Connecticut\, DC\, Delaware\, Maine\, Maryland\, Massachusetts\, New Hampshire\, New Jersey\, New York\, Pennsylvania\, Rhode Island\, Vermont\, or Virginia? \n  \nMeet us in Providence\, Rhode Island! \n  \nJoin Deb Fowler\, Founder and Chairman of the Board\, for a Northeast Region meet-up on April 12 at 12:00 PM Eastern. Connect with fellow HPP members\, share stories\, and learn more about our programs. Light refreshments will be provided. \n  \nRegistration is required and will close on April 7th. Register HERE. \n  \nIf you have any questions\, please reach out to Cindy@SoftBones.org.
URL:https://softbones.org/event/join-us-for-an-in-person-northeast-region-meeting/
LOCATION:Cafe Nero\, 75 Fountain Street\, Providence\, RI\, 02903\, United States
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250414T200000
DTEND;TZID=America/New_York:20250414T210000
DTSTAMP:20260426T112503
CREATED:20250214T191847Z
LAST-MODIFIED:20250214T192447Z
UID:11623-1744660800-1744664400@softbones.org
SUMMARY:New Patient Orientation Meeting - April 14\, 2025
DESCRIPTION:Calling all new HPP patients and individuals new to Soft Bones. Please join us for our New Patient Orientation on April 14th at 8 PM Eastern for a virtual Zoom meeting. \nThis is an opportunity to meet some of our team\, hear about our HPP resources\, learn about our programs\, and much more! \n\nPlease contact us HERE\, to register.
URL:https://softbones.org/event/new-patient-orientation-meeting-april-14-2025/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250416T190000
DTEND;TZID=America/New_York:20250416T200000
DTSTAMP:20260426T112503
CREATED:20250319T174519Z
LAST-MODIFIED:20250319T175104Z
UID:11756-1744830000-1744833600@softbones.org
SUMMARY:HPP Empowered: April 16\, 2025 at 7:00 PM Eastern
DESCRIPTION:Have you or a loved one been diagnosed with hypophosphatasia (HPP)? \nJoin Alexion Pharmaceuticals\, Inc. as they host their HPP Empowered virtual educational event on Wednesday\, April 16th\, 2025\, at 7:00 PM ET. \nRegister HERE. \n\n\nPresented by Alexion AstraZeneca Rare Disease.
URL:https://softbones.org/event/hpp-empowered-april-16-2025-at-700-pm-eastern/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250417T200000
DTEND;TZID=America/Chicago:20250417T210000
DTSTAMP:20260426T112503
CREATED:20250407T193349Z
LAST-MODIFIED:20250408T123637Z
UID:11837-1744920000-1744923600@softbones.org
SUMMARY:Southwest Region Zoom Meeting and Chat - April 17\, 2025
DESCRIPTION:Do you live in Arizona\, Hawaii\, Nevada\, New Mexico\, Southern California\, or Utah?  \n  \nJoin Region Leads Amy B.\, Sue K.\, and Adam W. for a Southwest Zoom Chat on Thursday\, April 17th at 6 PM MST/9 PM Eastern. This is a great opportunity to meet and catch up with fellow members from your region. It’s going to be a relaxed and friendly chat\, and we’d love to see you there! \n  \nRegistration register HERE.  \n  \nIf you have any questions\, please reach out to Cindy Reasor (Cindy@SoftBones.org).
URL:https://softbones.org/event/southwest-region-zoom-meeting-and-chat-april-17-2025/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250424T130000
DTEND;TZID=America/New_York:20250424T140000
DTSTAMP:20260426T112503
CREATED:20250402T171532Z
LAST-MODIFIED:20250423T171407Z
UID:11822-1745499600-1745503200@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat - April 24\, 2025
DESCRIPTION:Register for your spot today! \n\n\nJoin us on April 24\, 2025\, 1 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share your experiences with HPP. Registration is required. We hope to see you there! \nClick here to register.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-april-24-2025/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250426T150000
DTEND;TZID=America/New_York:20250426T160000
DTSTAMP:20260426T112503
CREATED:20250312T170319Z
LAST-MODIFIED:20250404T170038Z
UID:11693-1745679600-1745683200@softbones.org
SUMMARY:Southeast Region Zoom Meeting and Chat - April 26\, 2025
DESCRIPTION:Do you live in Alabama\, Georgia\, Florida\, Mississippi\, North Carolina\, South Carolina\, or Tennessee? \n  \nJoin Region Leads Blynda K.\, Scott G.\, and Tess O.\, for a Southeast Region Zoom Meeting on Saturday\, April 26th at 3 PM Eastern. Meet your newest Region Lead\, Tess O.\, and connect with others in your region. Don’t miss out! \n  \nPlease register HERE. \n  \nIf you have any questions\, please reach out to Cindy Reasor (Cindy@SoftBones.org).
URL:https://softbones.org/event/southeast-region-zoom-meeting-and-chat-april-26-2025/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250427T100000
DTEND;TZID=America/Chicago:20250427T130000
DTSTAMP:20260426T112503
CREATED:20250314T113840Z
LAST-MODIFIED:20250404T170209Z
UID:11697-1745748000-1745758800@softbones.org
SUMMARY:Join Us for an In-Person Midwest 1 Region Meeting - April 27\, 2025
DESCRIPTION:Do you live in Illinois\, Indiana\, Iowa\, Minnesota\, or Wisconsin? \nJoin Midwest 1 Region Lead\, Jan R. for a luncheon on Sunday\, April 27\, 2025\, from 10 AM – 1 PM Central in Coralville\, IA. All Midwest 1 Region members and families are welcome. Connect and chat with others from your region. Lunch will be served. \nRegistration is required and will close on April 12th. Please register HERE. \nIf you have any questions\, please reach out to Cindy@SoftBones.org.
URL:https://softbones.org/event/join-us-for-an-in-person-midwest-1-region-meeting/
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