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X-ORIGINAL-URL:https://softbones.org
X-WR-CALDESC:Events for Soft Bones
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241203T190000
DTEND;TZID=America/New_York:20241203T210000
DTSTAMP:20260515T110432
CREATED:20241120T050830Z
LAST-MODIFIED:20241120T051508Z
UID:11272-1733252400-1733259600@softbones.org
SUMMARY:STRENSIQ Perspectives
DESCRIPTION:Gain a new perspective on treatment! \n  \nJoin Alexion\, AstraZeneca on December 3rd  at 7:00 PM Eastern for a virtual meeting. Learn how to navigate treatment with STRENSIQ. Attendees will have the opportunity to learn from an experienced HPP healthcare provider\, HPP patient or caregiver\, and OneSourceTM. \n  \nRegistration before the event is required to receive a link to the webinar. Register at STRENSIQ.com/events. \n 
URL:https://softbones.org/event/strensiq-perspectives-2/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241204T200000
DTEND;TZID=America/New_York:20241204T210000
DTSTAMP:20260515T110432
CREATED:20241128T003242Z
LAST-MODIFIED:20241128T003242Z
UID:11278-1733342400-1733346000@softbones.org
SUMMARY:New Patient Orientation Meeting
DESCRIPTION:Calling all new HPP patients and individuals new to Soft Bones. Please join us for our New Patient Orientation on December 4th at 8 PM Eastern for a virtual Zoom meeting. \nThis is an opportunity to meet some of our team\, hear about our HPP resources\, learn about our programs\, and much more! \n\nPlease contact us HERE\, to register.
URL:https://softbones.org/event/new-patient-orientation-meeting/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241211T190000
DTEND;TZID=America/New_York:20241211T200000
DTSTAMP:20260515T110432
CREATED:20241127T231249Z
LAST-MODIFIED:20241127T231249Z
UID:11294-1733943600-1733947200@softbones.org
SUMMARY:Appy Hour
DESCRIPTION:The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their health and makes them valuable research partners for better HPP treatment and care.  \n  \nJoin us on December 11\, 2024\, at 7 PM Eastern\, over Zoom\, to learn more about myHPP and how to navigate the app. Learn from tech-savvy patient users and feel free to ask questions along the way. Let’s take steps to transform healthcare. Download the app in the Apple Store or Google Play Store today! \n  \nRegistration is required. Please register here. \n  \nIf you have any questions\, please reach out to Cindy Reasor at Cindy@SoftBones.org. 
URL:https://softbones.org/event/appy-hour-9/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241217T200000
DTEND;TZID=America/New_York:20241217T210000
DTSTAMP:20260515T110432
CREATED:20241127T015257Z
LAST-MODIFIED:20241127T015257Z
UID:11291-1734465600-1734469200@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat
DESCRIPTION:Register for your spot today! \n\n\nJoin us on December 17th at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share your experiences with HPP. Registration is required. We hope to see you there! \nClick here to register.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-16/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241227T110000
DTEND;TZID=America/New_York:20241227T120000
DTSTAMP:20260515T110432
CREATED:20241220T071214Z
LAST-MODIFIED:20241224T035744Z
UID:11387-1735297200-1735300800@softbones.org
SUMMARY:Region Lead Orientation - December 27th
DESCRIPTION:Calling all new and returning Region Leads for 2025. \n  \nPlease join us on December 27th at 11 AM Eastern for a Region Lead Orientation. Registration is required. Please register HERE. 
URL:https://softbones.org/event/region-lead-orientation-december-27/
LOCATION:Online
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