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UID:10218-1723287600-1723291200@softbones.org
SUMMARY:Appy Hour
DESCRIPTION:The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their health and makes them a valuable partner in research for better HPP treatment and care.  \n  \nCome join us on August 10th at 11 AM Eastern\, over Zoom\, to learn more about myHPP and how to navigate the app. Learn from tech savvy patient users and feel free to ask questions along the way. Join us in taking actionable steps to transform healthcare. Download the app in the Apple Store or Google Play Store today! \n  \nRegistration is required. Please register here. \n  \nIf you have any questions\, please reach out to Cindy Reasor at Cindy@SoftBones.org.
URL:https://softbones.org/event/appy-hour-4/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240815T200000
DTEND;TZID=America/New_York:20240815T210000
DTSTAMP:20260504T161837
CREATED:20240724T021811Z
LAST-MODIFIED:20240724T021811Z
UID:10221-1723752000-1723755600@softbones.org
SUMMARY:Appy Hour
DESCRIPTION:The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their health and makes them a valuable partner in research for better HPP treatment and care.  \n  \nCome join us on August 15th at 8 PM Eastern\, over Zoom\, to learn more about myHPP and how to navigate the app. Learn from tech savvy patient users and feel free to ask questions along the way. Join us in taking actionable steps to transform healthcare. Download the app in the Apple Store or Google Play Store today! \n  \nRegistration is required. Please register here. \n  \nIf you have any questions\, please reach out to Cindy Reasor at Cindy@SoftBones.org.
URL:https://softbones.org/event/appy-hour-5/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240817T120000
DTEND;TZID=America/Chicago:20240817T140000
DTSTAMP:20260504T161837
CREATED:20240615T015732Z
LAST-MODIFIED:20240814T033951Z
UID:9943-1723896000-1723903200@softbones.org
SUMMARY:Midwest 1 Region Patient Meeting
DESCRIPTION:Midwest 1 Region Meet-Up Opportunity  \nDo you live in Illinois\, Indiana\, Iowa\, Minnesota\, or Wisconsin? \n  \nJoin Region Lead\, Nicole Belting\, on Saturday August 17\, 2024 at 12 PM Central for a meet up in Illinois. We will meet at Blackberry Trails Park for lunch. A OneSource Case Manager will be there to field questions\, engage in conversations\, and more. Come outside and enjoy nature. We hope to see you there! This meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease. \n  \nDate: Saturday August 17\, 2024 \nTime: 12 PM  \nAddress: Blackberry Trails Park (Note: plug in 2535 Caliendo Cir\, Montgomery\, IL 60538 at the corner of Griffin Dr. & William Dr.)  \n  \n\nRegistration is required and will close on August 3\, 2024. Please register HERE.  \n\n  \nIf you have any questions\, please reach out to Cindy@SoftBones.org or Nicole@SoftBones.org
URL:https://softbones.org/event/midwest-1-region-patient-meeting/
LOCATION:Blackberry Trails Park\, 2535 Caliendo Cir\, Montgomery\, IL\, United States
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DTSTART;TZID=America/New_York:20240820T190000
DTEND;TZID=America/New_York:20240820T190000
DTSTAMP:20260504T161837
CREATED:20240820T044758Z
LAST-MODIFIED:20240820T044832Z
UID:10419-1724180400-1724180400@softbones.org
SUMMARY:HPP Empowered: August 20\, 2024 at 7:00 PM (Eastern)
DESCRIPTION:Register Today For This Informative Webinar. \nHave you or a loved one been diagnosed with hypophosphatasia (HPP)? \nJoin Alexion Pharmaceuticals\, Inc. as they host their HPP Empowered virtual educational event on August 20th at 7:00 PM Eastern. Learn more about the event and register below. Register now! \nJoin here: https://hypophosphatasia.com/events \n\n\nPresented by Alexion AstraZeneca Rare Disease.
URL:https://softbones.org/event/hpp-empowered-august-20-2024-at-700-pm-eastern/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240822T193000
DTEND;TZID=America/Los_Angeles:20240822T203000
DTSTAMP:20260504T161837
CREATED:20240726T211806Z
LAST-MODIFIED:20240730T013939Z
UID:10207-1724355000-1724358600@softbones.org
SUMMARY:Northeast Region Zoom Meeting and Chat
DESCRIPTION:Do you live in Connecticut\, DC\, Delaware\, Maine\, Maryland\, Massachusetts\, New Hampshire\, New Jersey\, New York\, Pennsylvania\, Rhode Island\, Vermont\, or Virginia?  \n  \nJoin Region Leads\, Judith Harris and Chris Denune\, on Thursday August 22\, 2024 at 7:30 PM Eastern for a Zoom Chat. Come learn more about our Northeast in-person meeting in October and connect with fellow HPP members. \n  \nRegistration is required. Please register HERE: \n  \nIf you have any questions\, please reach out to Judith Harris (Judith@SoftBones.org) or Cindy Reasor (Cindy@SoftBones.org). \n  \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease.
URL:https://softbones.org/event/northeast-region-zoom-meeting-and-chat/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240829T200000
DTEND;TZID=America/New_York:20240829T210000
DTSTAMP:20260504T161837
CREATED:20240802T224247Z
LAST-MODIFIED:20240802T224247Z
UID:10298-1724961600-1724965200@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat
DESCRIPTION:Register for your spot today! \n\n\nJoin us on August 29th at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share your experiences with HPP. Registration is required. We hope to see you there! \nClick here to register.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-13/
LOCATION:Online
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