Soft Bones

2023 Cannonball 5k Run, Roll, or Stroll - Live in New Jersey
2023-10-22 13:00 - 2023-11-21 15:00 (America/New_York) | Giralda Farms, Madison, NJ
It’s time to Run, Roll or Stroll in person in New Jersey!
Looking for something to do on Sunday, October 22nd? Join us to walk or run a 5k while supporting Soft Bones We will meet at Giralda Farms in Madison, NJ near the St. Huberts entrance at 1:00 pm. Donuts and cider will be served. Proceeds benefit Soft Bones and patients living with hypophosphatasia.

Register here for Cannonball 5k and select team NJ Cannonballers.

Northwest Region Patient Meeting
2023-11-09 12:00 - 14:00 | Terun Pizzaria, 448 California Ave, Palo Alto, CA, 94306, United States
Join Soft Bones’ Denise Goodbar for a Northwest Region luncheon on Thursday, November 9th, 2023 from 12-2PM at Terun Pizzeria at 448 California Ave, Palo Alto, CA 94306. Lunch will be served. All Northwest region members and families are welcome.
Registration is required and will close on November 7th, 2023.
Date: Thursday, November 9th, 2023
Time: 12PM to 2PM
Address: Terun Pizzeria, 448 California Ave, Palo Alto, CA 94306
If you have any questions, please reach out to cindy@softbones.org

Sponsored in part by Alexion, AstraZeneca Rare Disease.
Register now with this link!

Unmask HPP Webinar: Living with HPP
2023-11-16 19:00 - 20:00 | Online
Register Today For This Informative Webinar.
Presenter: Laura Cross, MS, CGC
Are you navigating an HPP (hypophosphatasia) diagnosis? Whether you’re new to HPP or a long-time patient or caregiver, there’s always more to learn about this disease. That’s why Alexion invited a medical professional/a physician and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions! Join to learn more about living with HPP.
Presented by Alexion AstraZeneca Rare Disease.
