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X-WR-CALDESC:Events for Soft Bones
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DTSTART;TZID=America/New_York:20230810T190000
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UID:7885-1691694000-1691697600@softbones.org
SUMMARY:Region Lead Bi- Monthly Call
DESCRIPTION:FOR SOFT BONES REGION LEADS ONLY: Join the Region Lead bi- monthly call on Thursday August 10th from 7-8 pm EST. \nFor questions reach out to info@softbones.org
URL:https://softbones.org/event/region-lead-bi-monthly-call/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;TZID=Asia/Kolkata:20230813T130000
DTEND;TZID=Asia/Kolkata:20230813T130000
DTSTAMP:20230729T030708Z
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LAST-MODIFIED:20230729T030708Z
UID:7989-1691931600-1691931600@softbones.org
SUMMARY:Midwest 1 Region Meeting
DESCRIPTION:Join Region Lead Nicole B. for a conversation as stories about living and caring for someone with HPP are shared on Sunday\, August 13\, from 1:00 p.m.- 4:00 p.m. CST!\n\n\nOneSource Case Manager\, Krista Higgins\, will also be in attendance to give an overview of the OneSource program. Refreshments will be served\, and the address will be shared with you upon registration.\n\n\n\nRSVP by August 6\, 2023. The meeting is open to those residing in Illinois\, Indiana\, Iowa\, Minnesota & Wisconsin. Contact Nicole B. for details or with any questions nicole@softbones.org. Register now with this link!
URL:https://softbones.org/event/midwest-1-region-meeting/
LOCATION:Cincinnati\, OH\, Starbucks - Pavilion Shopping Center\, 2692 Madison Rd. Rockwood\, Cincinnati\, OH
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230822T183000
DTEND;TZID=America/New_York:20230822T193000
DTSTAMP:20230613T005928Z
CREATED:20230613T005928Z
LAST-MODIFIED:20230613T005928Z
UID:7890-1692729000-1692732600@softbones.org
SUMMARY:Unmask HPP Webinar: Life's Changes And The Support You Have Along The Way
DESCRIPTION:Register Today For This Informative Webinar. \nPresenter: Miladys Palau-Collazo\, MD\, Pediatric Endocrinologist \nAre you curious about life changes and the support you have along the way while navigating HPP? That’s why Alexion has invited a physician/specialist and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions! Join to learn more about tips for traveling with your medication. \nPresented by Alexion AstraZeneca Rare Disease.
URL:https://softbones.org/event/unmask-hpp-webinar-lifes-changes-and-the-support-you-have-along-the-way/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230825T173000
DTEND;TZID=America/New_York:20230825T213000
DTSTAMP:20230607T234916Z
CREATED:20230607T234916Z
LAST-MODIFIED:20230607T234916Z
UID:7889-1692984600-1692999000@softbones.org
SUMMARY:Denim & Diamonds
DESCRIPTION:NEW DATE for Soft Bones Denim & Diamonds event now happening on August 25th\, 2023 from 5:30 p.m.- 9:30 p.m. \nJoin us for a fun night of dancing\, live music\, food\, drinks\, auction items and more! \nRegister with the link below and we’ll see you there! Yee Haw!
URL:https://softbones.org/event/denim-diamonds-2/
LOCATION:Harvest Hall\, Chester\, NJ\, 100 Rte 24\, Chester\, NJ\, 07930\, United States
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230829T200000
DTEND;TZID=America/New_York:20230829T210000
DTSTAMP:20230708T111826Z
CREATED:20230708T111826Z
LAST-MODIFIED:20230708T111826Z
UID:7940-1693339200-1693342800@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat
DESCRIPTION:Join the HPP community in an HPP AND ME live chat on Tuesday\, August 29th\, 2023 at 8:00 p.m. EDT. Meet the faces behind the names\, talk about HPP or just life in general\, and connect with others! Click the link below to join the call.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-4/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230830T130000
DTEND;TZID=America/New_York:20230830T140000
DTSTAMP:20230708T112037Z
CREATED:20230708T112037Z
LAST-MODIFIED:20230708T112037Z
UID:7942-1693400400-1693404000@softbones.org
SUMMARY:HPP AND ME Zoom Tutorial
DESCRIPTION:Soft Bones will be hosting a HPP AND ME Zoom tutorial on Wednesday\, August 30th\, at 1:00 p.m. EDT. Learn more about the HPP community\, connect with others and learn how to navigate HPP AND ME! Click the link below to join the call.
URL:https://softbones.org/event/hpp-and-me-zoom-tutorial-2/
LOCATION:Online
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