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X-WR-CALDESC:Events for Soft Bones
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DTSTART;TZID=America/New_York:20230602T080000
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DTSTAMP:20260424T182545
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UID:7621-1685692800-1685898000@softbones.org
SUMMARY:2nd Soft Bones International Scientific Meeting 2023
DESCRIPTION:Join Soft Bones at our 2023 Scientific Meeting on June 2-4\, 2023. \n 
URL:https://softbones.org/event/2nd-soft-bones-international-scientific-meeting-2023/
LOCATION:Bethesda\, MD\, United States
ATTACH;FMTTYPE=image/png:https://softbones.org/wp-content/uploads/2023/02/Copy-of-Scientific-Meeting-Logo.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230608T190000
DTEND;TZID=America/New_York:20230608T200000
DTSTAMP:20260424T182545
CREATED:20230607T234029Z
LAST-MODIFIED:20230607T235031Z
UID:7859-1686250800-1686254400@softbones.org
SUMMARY:Region Lead Bi-Monthly Call
DESCRIPTION:FOR SOFT BONES REGION LEADS ONLY: Join the Region Lead bi- monthly call on Thursday June 8th from 7-8 pm EST. \nFor questions reach out to info@softbones.org
URL:https://softbones.org/event/region-lead-meeting/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230615T200000
DTEND;TZID=America/New_York:20230615T210000
DTSTAMP:20260424T182545
CREATED:20230524T034237Z
LAST-MODIFIED:20230530T044056Z
UID:7840-1686859200-1686862800@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat
DESCRIPTION:Join the HPP community in an HPP AND ME live chat on June 8th\, 2023 at 8:00 p.m. EDT. Meet the faces behind the names\, talk about HPP or just life in general\, and connect with others! Click the link below to join the call.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-2/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230622T203000
DTEND;TZID=America/New_York:20230622T213000
DTSTAMP:20260424T182545
CREATED:20230325T024558Z
LAST-MODIFIED:20230325T024558Z
UID:7732-1687465800-1687469400@softbones.org
SUMMARY:Unmask HPP Webinar: Tips For Traveling With Your Medication
DESCRIPTION:Register Today For This Informative Webinar. \nPresenter:  Gnanagurudasan Prakasam\, MD\, Pediatric Endocrinology \nAre you navigating an HPP diagnosis? Whether you’re new to HPP or a long-time patient or caregiver\, there’s always more to learn about this disease. That’s why Alexion has invited a physician/specialist and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions! Join to learn more about tips for traveling with your medication. \nPresented by Alexion AstraZeneca Rare Disease.
URL:https://softbones.org/event/unmask-hpp-webinar-tips-for-traveling-with-your-medication-3/
LOCATION:Online
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