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X-WR-CALDESC:Events for Soft Bones
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DTSTART;TZID=America/New_York:20230504T150000
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DTSTAMP:20260501T175428
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UID:7809-1683212400-1683216000@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat
DESCRIPTION:  \nJoin the HPP community in an HPP AND ME live chat on May 4\, 2023\, at 3:00 p.m. EDT. Meet the faces behind the names\, talk about HPP or just life in general\, and connect with others! Click the link below to join the call. 
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230509T200000
DTEND;TZID=America/New_York:20230509T210000
DTSTAMP:20260501T175428
CREATED:20230504T070430Z
LAST-MODIFIED:20230504T070727Z
UID:7812-1683662400-1683666000@softbones.org
SUMMARY:HPP AND ME Zoom Tutorial
DESCRIPTION:Soft Bones will be hosting a HPP AND ME Zoom tutorial on Tuesday\, May 9th\, at 8:00 p.m. EDT. Learn more about the HPP community\, connect with others and learn how to navigate HPP AND ME! Click the link below to join the call.
URL:https://softbones.org/event/hpp-and-me-zoom-tutorial/
LOCATION:Online
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DTSTART;TZID=America/New_York:20230516T193000
DTEND;TZID=America/New_York:20230516T203000
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UID:7684-1684265400-1684269000@softbones.org
SUMMARY:Unmask HPP Webinar: Living with HPP
DESCRIPTION:Register Today For This Informative Webinar. \nPresenter:  Jacqui Kernaghan\, PA- C\, Preventative Medicine \nAre you navigating an HPP diagnosis? Whether you’re new to HPP or a long-time patient or caregiver\, there’s always more to learn about this disease. That’s why Alexion has invited a physician/specialist and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions! Join to learn more about living with HPP. \nPresented by Alexion AstraZeneca Rare Disease.
URL:https://softbones.org/event/unmask-hpp-webinar-living-with-hpp/
LOCATION:Online
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DTSTART;TZID=America/New_York:20230523T190000
DTEND;TZID=America/New_York:20230523T203000
DTSTAMP:20260501T175428
CREATED:20230426T234522Z
LAST-MODIFIED:20230426T234522Z
UID:7790-1684868400-1684873800@softbones.org
SUMMARY:Teen Advisory Council (TAC) Trivia Night
DESCRIPTION:Join in the fun in our virtual Trivia Night Tuesday\, May 23\, 2023\, from 7 pm to 8:30 pm EST. The Teen Advisory Council (TAC) invites you to show off your knowledge and win some great prizes. Please register before 12 pm EST on Tuesday\, May 23\, 2023! 🎲 \nClick the link below to register now. https://app.donorview.com/Event/EventInfo?prm=Fl1VJGyogmJ1FXnB77qRza1JgqsaSij_6zHcUS6WKT02OckMd5fAQJNFWPAaAg9R_w7NQrlffptMOja6fVv8Lug7-Qlv9yAPcO-vg3N1RzgGIogJggupZPpWZT4GAgkqhIQMG7I-7OZy3_w8BnYEgQjxfMsEiySqKpRLqqXPysDz0Nx7BWzhQP1oxRFVZ4uIu3a5x8ozyjgdP7UPPHl1eRHdvsrXiuSwEKK5WtBSMwBljnty48IYI5uD2xhEkmfH0
URL:https://softbones.org/event/teen-advisory-council-tac-trivia-night/
LOCATION:Online
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