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X-WR-CALDESC:Events for Soft Bones
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DTSTART;TZID=America/New_York:20230412T200000
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UID:7766-1681329600-1681333200@softbones.org
SUMMARY:HPP AND ME Zoom Meeting
DESCRIPTION:  \n \nJoin the HPP AND ME community members in a live chat via  Zoom on Wednesday\, April 12th\, at 8:00 p.m. EDT! Come together and get to know one another\, meet the faces behind the screen names\, and talk about HPP! \nYou can register for the meeting with the link below. https://us06web.zoom.us/meeting/register/tZErdemtrjouHtYWuxpqbfgQx6XsHXVcDciB#/registration
URL:https://softbones.org/event/hpp-and-me-zoom-meeting/
LOCATION:Online
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DTSTART;TZID=America/New_York:20230419T190000
DTEND;TZID=America/New_York:20230419T200000
DTSTAMP:20260513T211748
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LAST-MODIFIED:20230321T063222Z
UID:7678-1681930800-1681934400@softbones.org
SUMMARY:Unmask HPP Webinar: Genetics and HPP
DESCRIPTION:Register Today For This Informative Webinar. \nPresenter:  Dmitriy Niyazov\, MD \nAre you navigating an HPP diagnosis? Whether you’re new to HPP or a long-time patient or caregiver\, there’s always more to learn about this disease. That’s why Alexion has invited a physician/specialist and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions! Join to learn more about genetics and HPP. \nPresented by Alexion AstraZeneca Rare Disease.
URL:https://softbones.org/event/unmask-hpp-webinar-genetics-and-hpp/
LOCATION:Online
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DTSTART;TZID=America/New_York:20230421T190000
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UID:7740-1682103600-1682109000@softbones.org
SUMMARY:Soft Bones Teen Advisory Council (TAC) Trivia Night
DESCRIPTION:  \n \nJoin in the fun of our virtual Trivia Night\, Friday April 21\, 2023 7pm to 8:30pm EST. The Teen Advisory Council (TAC) invites you to show off your knowledge and win some great prizes. Please register before 12pm EST on Friday 21\, 2023.  \n 
URL:https://softbones.org/event/soft-bones-teen-advisory-council-tac-trivia-night/
LOCATION:Online
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