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UID:7503-1675857600-1675861200@softbones.org
SUMMARY:HPP TeleECHO: HPP Genetic Nosology and Clinical Relevance
DESCRIPTION:Join our HPP TeleECHO: HPP TeleECHO: HPP Genetic Nosology and Clinical Relevance on February 8th at 12PM EST\, presented by Eric Rush\, MD. \nFor more information\, contact us at ECHO@SoftBones.org or (866)- 827- 9937.
URL:https://softbones.org/event/hpp-teleecho-hpp-genetic-nosology-and-clinical-relevance/
LOCATION:Online
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UID:7266-1676649600-1676739600@softbones.org
SUMMARY:National Patient Meeting 2023
DESCRIPTION:Join us for our 2023 National Patient Meeting happening on February 17-18 in Phoenix\, Arizona! \nThis important event will bring the HPP community together to learn valuable information about hypophosphatasia from healthcare experts and peers. There is no cost to attend this meeting. \nClick here to learn more and view the meeting agenda.
URL:https://softbones.org/event/national-patient-meeting-2023/
LOCATION:Phoenix\, Arizona
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DTSTART;TZID=America/New_York:20230228T000000
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DTSTAMP:20260405T182134
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UID:7567-1677542400-1677628740@softbones.org
SUMMARY:Rare Disease Day 2023
DESCRIPTION:Raising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \nSHARE YOUR COLOURS
URL:https://softbones.org/event/rare-disease-day-2023/
LOCATION:Online
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