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DTSTART;TZID=America/New_York:20221110T210000
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DTSTAMP:20260617T100402
CREATED:20221013T031329Z
LAST-MODIFIED:20221013T032808Z
UID:7114-1668114000-1668117600@softbones.org
SUMMARY:Unmask HPP Webinar: Tips for Traveling with your Medication
DESCRIPTION:Register Today For This Informative Webinar. \nPresenter:  Lynn Kohlmeier\, MD \nAre you navigating an HPP diagnosis? Whether you’re new to HPP or a long-time patient or caregiver\, there’s always more to learn about this disease. That’s why Alexion has invited a physician/specialist and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions! Join to learn more about Tips for Traveling with your Medicine. \nPresented by Alexion AstraZeneca Rare Disease.
URL:https://softbones.org/event/unmask-hpp-webinar-tips-for-traveling-with-your-medication-2/
LOCATION:Phoenix\, AZ
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DTSTART;TZID=America/New_York:20221111T120000
DTEND;TZID=America/New_York:20221111T130000
DTSTAMP:20260617T100402
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LAST-MODIFIED:20221013T031739Z
UID:6658-1668168000-1668171600@softbones.org
SUMMARY:HPP TeleECHO: Hypercalcemia in HPP
DESCRIPTION:
URL:https://softbones.org/event/hpp-teleecho-hypercalcemia-in-hpp/
LOCATION:Phoenix\, AZ
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DTSTART;TZID=America/New_York:20221120T110000
DTEND;TZID=America/New_York:20221120T150000
DTSTAMP:20260617T100402
CREATED:20221116T000357Z
LAST-MODIFIED:20221116T000357Z
UID:7393-1668942000-1668956400@softbones.org
SUMMARY:Botox\, Brunch & Bubbly
DESCRIPTION:Bring a friend or two and join us for a Botox\, Brunch\, and Bubbly party on November 20th from 11AM – 3PM at Enriched Aesthetics in Morristown\, NJ. The fundraiser benefits Soft Bones\, Inc.  Enriched Aesthetics strives to provide an enriching experience\, which will enhance and compliment your natural beauty\, inspiring you to become the best version of yourself. Registration is required. \n  \nDate: Sunday\, November 20th\, 2022 \nTime: 11:00 AM – 3:00 PM \n  \n  \nRegister here by November 15th to get your Botox at the reduced rate of $10/unit (regular price $17/unit). \n  \nProceeds benefit Soft Bones\, Inc.: The US Hypophosphatasia Foundation\, to support research for a cure and families living with HPP in the United States.
URL:https://softbones.org/event/botox-brunch-bubbly/
LOCATION:Enriched Aesthetics\, 1098 Mt Kemble Ave\, Morristown\, NJ\, 07960\, United States
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