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X-WR-CALDESC:Events for Soft Bones
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DTSTART;TZID=America/New_York:20260730T200000
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UID:15612-1785441600-1785445200@softbones.org
SUMMARY:MyHPP and HPP AND ME Zoom Tutorial Session - July 30\, 2026 at 8 PM Eastern
DESCRIPTION:Looking to get the most out of the myHPP app and HPP AND ME community? Join Cindy Reasor on Thursday\, July 30th\, at 8 PM Eastern for an interactive tutorial session designed to help you confidently navigate both platforms. Whether you’re new to the HPP community or you’ve been with us for years\, this meeting will sharpen your skills. Discover features and resources you may not be using yet and ask questions along the way. \n  \nRegistration is required. Please register HERE. \n  \nAfter registering\, Zoom will email you a link to join. We can’t wait to see you there and help you make the most of these valuable resources!
URL:https://softbones.org/event/myhpp-and-hpp-and-me-zoom-tutorial-session-july-30-2026-at-8-pm-eastern/
LOCATION:Online
ORGANIZER;CN="Cindy R.":MAILTO:cindy@softbones.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260820T200000
DTEND;TZID=America/New_York:20260820T210000
DTSTAMP:20260728T201657Z
CREATED:20260728T194447Z
LAST-MODIFIED:20260728T201657Z
UID:15665-1787256000-1787259600@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat - August 20\, 2026 at 8 PM Eastern
DESCRIPTION:Register for your spot today! \n\n\nJoin us on August 20 at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share your experiences with HPP. Registration is required. We hope to see you there! \nClick here to register.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-july-23-2026-at-300-pm-eastern-copy/
LOCATION:Online
ORGANIZER;CN="Cindy R.":MAILTO:cindy@softbones.org
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BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20260912T173000
DTEND;TZID=America/Halifax:20260912T213000
DTSTAMP:20260728T161408Z
CREATED:20260305T170037Z
LAST-MODIFIED:20260728T161408Z
UID:13914-1789234200-1789248600@softbones.org
SUMMARY:4th Annual Denim and Diamonds Fundraiser - Registration Now Open!
DESCRIPTION:Registration is now open for the 4th Annual Denim and Diamonds Fundraiser! \n  \nThe Soft Bones’ Annual Denim and Diamonds event will be held later this year to soak up the late-summer rays and the harvest season. Join us on Saturday\, September 12th\, at Alstede Farms as we enjoy the crisp air and the peak of the harvest season. It’s the perfect time to dust off your denim\, add a little sparkle\, and Two Step for a great cause. \n  \nThere will be: \n🤠Live Music and Dancing \n🍖 BBQ \n💎Silent Auction \n  \nDate: September 12\, 2026\nLocation: Alstede Farms\, 100 Rte 24\, Chester\, NJ 07930\nTime: 5:30 PM – 9:30 PM \n  \nRegister HERE. \n  \nInterested in donating a Silent Auction item or being a sponsor? Please contact Jessica at Jessica@softbones.org for more information.
URL:https://softbones.org/event/4th-annual-denim-and-diamonds-fundraiser-save-the-date/
LOCATION:Harvest Hall at Alstede Farms\, 100 Rte 24\, Chester\, 07930\, United States
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DTSTART;TZID=America/New_York:20260928T100000
DTEND;TZID=America/New_York:20260928T180000
DTSTAMP:20260506T174151Z
CREATED:20251104T133638Z
LAST-MODIFIED:20260506T174151Z
UID:13324-1790589600-1790618400@softbones.org
SUMMARY:REGISTRATION IS NOW OPEN - 18th Annual Golf Classic and 3rd Annual Pickleball Tournament
DESCRIPTION:Registration is Now Open! \nRegister now for the 18th Annual Soft Bones Golf Classic and 3rd Annual Pickleball Classic\, taking place on Monday\, September 28\, 2026\, at the world-class Somerset Hills Country Club in Bernardsville\, New Jersey. \nWhether you’re teeing off\, playing pickleball\, or cheering from the sidelines\, your presence and generosity amplify hope for families battling HPP.  \nRegister: HERE \nNot a golfer or pickleball player? Consider one of our sponsorships to show your support or to highlight your business. \n  \nFor registration or event inquiries\, please contact Jessica Adams.
URL:https://softbones.org/event/18th-annual-golf-classic-and-3rd-annual-pickleball-tournament-save-the-date/
LOCATION:Somerset Hills Country Club\, 180 Mine Mount Rd\, Bernardsville\, New Jersey\, 07924
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261003T120000
DTEND;TZID=America/New_York:20261003T130000
DTSTAMP:20260728T172059Z
CREATED:20260722T184559Z
LAST-MODIFIED:20260728T172059Z
UID:15648-1791028800-1791032400@softbones.org
SUMMARY:Join Us for a Midwest 2 Region In-Person Meeting on October 3\, 2026 at 12 PM Eastern
DESCRIPTION:Do you live in Kentucky\, Michigan\, Ohio\, or West Virginia? \nJoin us in Toledo\, OH! \nRegion Lead Nichole M. is hosting an in-person meeting on Saturday\, October 3\, 2026\, starting at 12 PM Eastern. All Midwest 2 Region members and families are welcome to learn more about their local HPP support system and connect with fellow HPP families. Lunch will be provided. \n📅 Registration is required and will close on September 19\, 2026. Register HERE. \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease.
URL:https://softbones.org/event/join-us-for-a-midwest-2-region-zoom-meeting-on-october-3-2026-at-12-pm-eastern/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20261009
DTEND;VALUE=DATE:20261013
DTSTAMP:20260715T174026Z
CREATED:20260715T174016Z
LAST-MODIFIED:20260715T174026Z
UID:15630-1791504000-1791849599@softbones.org
SUMMARY:2026 ASBMR Annual Meeting
DESCRIPTION:The Soft Bones team will be attending the 2026 ASBMR Annual Meeting in Boston\, MA\, from October 9-12. Come visit us at booth #825.
URL:https://softbones.org/event/2026-asbmr-annual-meeting/
LOCATION:Boston\, MA
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20261106
DTEND;VALUE=DATE:20261109
DTSTAMP:20260715T163624Z
CREATED:20260715T160907Z
LAST-MODIFIED:20260715T163624Z
UID:15619-1793923200-1794182399@softbones.org
SUMMARY:Third Soft Bones International Scientific Meeting - 2026
DESCRIPTION:The Third Soft Bones International Scientific Meeting will take place in New York City from November 6–8\, bringing together leading researchers\, clinicians\, and industry partners to advance hypophosphatasia (HPP) research and improve patient care. \nThis meeting is where new ideas\, collaborations\, and breakthroughs begin. As our global HPP community continues to grow\, your support is more important than ever. \nIf you believe in advancing HPP research and creating a brighter future for our community\, please consider donating today. Help us reach our $25\,000 goal by donating (HERE)\, participating in our Beach Towel Fundraiser (HERE)\, and sharing this campaign with your family\, friends\, and coworkers.
URL:https://softbones.org/event/third-soft-bones-international-scientific-meeting-2026/
LOCATION:New York City
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