HPP AND ME UK Live Zoom Chat - April 21, 2026 at 7 PM GMT
2026-04-21 19:00 - 20:00 UTC | Online
Attention all UK HPP members!
Soft Bones is hosting an HPP AND ME Zoom Chat for all patients, caregivers, and families living in the UK! Join Ash F. and Meryl C. as they host a meeting on April 21, 2026, at 7 PM GMT (Greenwich Mean Time). We’d love to see you there!
Registration is required. Please register HERE.
Join the HPP AND ME UK Forum: HERE

Join Us for a Northeast In-Person Region Meeting - April 25, 2026 at 11 AM Eastern
2026-04-25 11:00 - 13:00 (America/Halifax)
🎉 Registration is now open!

Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, or Virginia?

Join us for the Northeast Region In-Person Meeting on April 25 at 11 AM Eastern.

Region Leads Amy W., Judith H., and Laura T. will host a gathering at Dave & Buster’s near Times Square, where a light lunch will be provided. OneSource Case Manager will be in attendance to answer any HPP-related questions you may have. It’s a great chance to meet others from your region, share experiences, and build community.

📅 Registration is required and closes April 11, 2026. Be sure to reserve your spot HERE!

This meeting is sponsored in part by Alexion, AstraZeneca Rare Disease.

Join Us for a South Central In-Person Region Meeting - April 30, 2026 at 5 PM Central
2026-04-30 17:00 - 19:00 (America/Chicago)
Registration is now open! 🎉
Do you live in Louisiana or Texas?
Join us in Azle, TX!
South Central Region Lead, Cassandra S., will be hosting a meeting on Thursday, April 30th, at 5 PM Central. OneSource Case Managers, Sandi Tefft and Kayla Wehrend, will be in attendance to answer questions and share resources. Dinner will be served. Come ready to mingle, talk about HPP, and meet others living with HPP. We hope to see you there!
Registration is required and will close on April 27th. Register HERE.
This meeting is sponsored in part by Alexion, AstraZeneca Rare Disease.

HPP AND ME Live Zoom Chat - May 12th at 8 PM Eastern
2026-05-12 20:00 - 21:00 (America/New_York) | Online
Register for your spot today!

Join us on May 12th at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share your experiences with HPP. Registration is required. We hope to see you there!
Click here to register.

Join Us for a Northwest In-Person Region Meeting- May 17, 2026 at 11 AM Pacific Time
2026-05-17 11:00 - 14:00 (America/Denver)
Registration is now open! 🎉
Do you live in Alaska, Idaho, Montana, Northern California, Oregon, or Washington?
Join us in Penn Valley, CA!
Northwest Region Leads, Scarlett P. and Haley T., will host an in-person luncheon on May 17, 2026, from 11 AM-2 PM Pacific Time. Catch up with your Region Leads and connect with others in your area. Lunch will be provided.
Registration is required and will close on May 3, 2026. Register HERE.
Remember to join the HPP AND ME Northwest Forum: HERE.
This meeting is sponsored in part by Alexion, AstraZeneca Rare Disease.

Join Us for a Midwest 2 Region Zoom Meeting on May 21, 2026 at 7 PM Eastern
2026-05-21 19:00 - 20:00 (America/New_York)
Do you live in Kentucky, Michigan, Ohio, or West Virginia?
Join Region Leads Nichole M. & Jennifer W. for a Zoom Meeting on May 21, 2026, at 7 PM Eastern. All Midwest 2 Region patients and caregivers are welcome to connect and chat.
📅 Registration is required. Be sure to reserve your spot HERE!
Once you register, you will receive the Zoom join link directly via email from Zoom. We’d love to see you there!
This meeting is sponsored in part by Alexion, AstraZeneca Rare Disease.

HPP AND ME UK Live Zoom Chat - May 28th at 7 PM GMT
2026-05-28 19:00 - 20:00 UTC | Online
Calling all UK members!
Ash F. and Meryl C. are hosting a UK HPP AND ME Zoom Chat on Thursday, May 28th at 7 PM GMT. This is the perfect time to learn more about your local support system and connect with others in the area. We’d love to see you there!
Registration is required. Please register HERE.
Plus, don’t forget to join the HPP AND ME UK Forum for the latest updates below: HERE

TAC Meeting: TAC Art Night June15, 2026 at 8 PM Eastern
2026-06-15 20:00 - 21:00 (America/New_York) | Online
🚨 RSVP Needed for next TAC session🚨

Calling all Teen Advisory Council members! Join us on June 15th at 8 PM Eastern for our next TAC night. Please RSVP to the email or respond to our text message by June 5th so we can send your painting supplies in time, and reply to our email to secure your spot and supplies!

Interested in joining TAC? Fill out the form, HERE. TAC is sponsored in part by Alexion, AstraZeneca Rare Disease.

HPP AND ME Live Zoom Chat - June 18th at 8 PM Eastern
2026-06-18 20:00 - 21:00 (America/New_York) | Online
Register for your spot today!

Join us on June 18th at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share your experiences with HPP. Registration is required. We hope to see you there!
Click here to register.

Australia Zoom Chat - June 21st at 8 PM Melbourne
2026-06-21 20:00 - 21:00 (Australia/Melbourne) | Online
Calling all HPPers living in Australia!
Want to understand better NDIS and how it could support you or a loved one living with HPP?
Join Soft Bones Australia for a special live Zoom Meeting on June 21, 2026, at 8 PM (Melbourne time), focused on navigating the National Disability Insurance Scheme (NDIS). Whether you’re new to the program or looking for guidance on the application process, this session will help you learn about eligibility, support, and services provided, and how a plan can meet your needs.
Bring your questions and connect with others in the Australian HPP community during this informative and interactive discussion. This event is exclusively for individuals living in Australia. Registration is required.
Please reserve your spot: HERE!
Visit the NDIS website to learn more: https://www.ndis.gov.au/

2026 National Patient Meeting - Registration is Now Closed
2026-06-26 14:00 - 2026-06-27 17:00 (America/Halifax) | Chattanoogan Hotel, 1201 Broad St, Chattanooga, TN, 37402
Registration is now closed for the 2026 National Patient Meeting.
Taking place on June 26-27 in Chattanooga, TN, this is an informative gathering where individuals and families affected by HPP can connect, share experiences, and learn directly from leading experts in HPP. Check out our agenda for an overview of the planned events and speakers.
Registration is closed, but you can reach out to Cindy for more information or questions.
This meeting is sponsored in part by:
Headline Sponsor:

Champion Sponsorship:

Community Builder:

4th Annual Denim and Diamonds Fundraiser - Save the Date!
2026-09-12 17:30 - 21:30 (America/Halifax) | Harvest Hall at Alstede Farms, 100 Rte 24, Chester, 07930, United States
Save the Date for our 4th Annual Denim and Diamonds Fundraiser!

The Soft Bones’ Annual Denim and Diamonds fundraiser will be held later this year to soak up the late summer rays and harvest season. Join us on Saturday, September 12th, at Alstede Farms, as we enjoy the crisp air and the peak harvest season. It’s the perfect time to dust off your denim, add a little sparkle, and Two Step for a great cause.

There will be:
🤠Live Music and Dancing
🍖 BBQ
💎Silent Auction

Date: September 12, 2026
Location: Alstede Farms, 100 Rte 24, Chester, NJ 07930
Time: 5:30 PM – 9:30 PM

Registration link coming soon! Mark your calendars and get ready to celebrate the changing of the season.

Interested in donating a Silent Auction item or being a sponsor? Please contact Jessica at Jessica@softbones.org for more information.

REGISTRATION IS NOW OPEN - 18th Annual Golf Classic and 3rd Annual Pickleball Tournament
2026-09-28 10:00 - 18:00 (America/New_York) | Somerset Hills Country Club, 180 Mine Mount Rd, Bernardsville, New Jersey, 07924
Registration is Now Open!
Register now for the 18th Annual Soft Bones Golf Classic and 3rd Annual Pickleball Classic, taking place on Monday, September 28, 2026, at the world-class Somerset Hills Country Club in Bernardsville, New Jersey.
Whether you’re teeing off, playing pickleball, or cheering from the sidelines, your presence and generosity amplify hope for families battling HPP.
Register: HERE
Not a golfer or pickleball player? Consider one of our sponsorships to show your support or to highlight your business.

For registration or event inquiries, please contact Jessica Adams.
