Soft Bones

Join Us for a Midwest 2 Region In-Person Meeting on October 3, 2026 at 12 PM Eastern
2026-10-03 12:00 - 15:00 (America/New_York)
Do you live in Kentucky, Michigan, Ohio, or West Virginia?
Join us in Toledo, OH!
Region Lead Nichole M. is hosting an in-person meeting on Saturday, October 3, 2026, starting at 12 PM Eastern. All Midwest 2 Region members and families are welcome to learn more about their local HPP support system and connect with fellow HPP families. Lunch will be provided. OneSource Case Manager Bianca Hernandez will be there to answer questions.
📅 Registration is required and will close on September 19, 2026. Register HERE.
This meeting is sponsored in part by Alexion, AstraZeneca Rare Disease.

2026 ASBMR Annual Meeting
2026-10-09 - 2026-10-12 | Boston, MA
The Soft Bones team will be attending the 2026 ASBMR Annual Meeting in Boston, MA, from October 9-12. Come visit us at booth #825.

Join Us for a Southwest In-Person Region Meeting on October 17, 2026 at 11 AM MST
2026-10-17 11:00 - 14:00 (America/Phoenix) | Dave & Busters, 2000 E Rio Salado Pkwy Suite 1100, Tempe, AZ, 85288, United States
Do you live in Arizona, Hawaii, Nevada, New Mexico, Southern California, or Utah?
Join us in Tempe, AZ!
Join Region Leads Amy B. and Sue K. for a Southwest in-person meeting on Saturday, October 17, 2026, at 11 AM MST. This is a great opportunity to meet and catch up with fellow members from your region. It’s going to be a relaxed and friendly gathering, and we’d love to see you there! Lunch will be served. OneSource Case Manager Angela Corso will be there to answer questions.
📅 Registration is required and will close on October 2nd. Register HERE.

Third Soft Bones International Scientific Meeting - 2026
2026-11-06 - 2026-11-08 | New York City
The Third Soft Bones International Scientific Meeting will take place in New York City from November 6–8, bringing together leading researchers, clinicians, and industry partners to advance hypophosphatasia (HPP) research and improve patient care.
This meeting is where new ideas, collaborations, and breakthroughs begin. As our global HPP community continues to grow, your support is more important than ever.
If you believe in advancing HPP research and creating a brighter future for our community, please consider donating today. Help us reach our $25,000 goal by donating (HERE), participating in our Beach Towel Fundraiser (HERE), and sharing this campaign with your family, friends, and coworkers.
