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X-WR-CALDESC:Events for Soft Bones
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231012T190000
DTEND;TZID=America/New_York:20231012T200000
DTSTAMP:20260403T190508
CREATED:20230607T234454Z
LAST-MODIFIED:20230607T234454Z
UID:7887-1697137200-1697140800@softbones.org
SUMMARY:Region Lead Bi-Monthly Call
DESCRIPTION:FOR SOFT BONES REGION LEADS ONLY: Join the Region Lead bi- monthly call on Thursday October 12th from 7-8 pm EST. \nFor questions reach out to info@softbones.org
URL:https://softbones.org/event/region-lead-bi-monthly-call-2/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231002
DTEND;VALUE=DATE:20231003
DTSTAMP:20260403T190508
CREATED:20221109T080053Z
LAST-MODIFIED:20230725T042907Z
UID:7363-1696204800-1696291199@softbones.org
SUMMARY:Soft Bones 15th Annual Golf Classic 2023
DESCRIPTION:Golf for a great cause! Join Soft Bones at the beautiful Somerset Hills Country Club in Bernardsville\, NJ for the 15th Annual Golf Classic to support hypophosphatasia. Register now with the link below!
URL:https://softbones.org/event/soft-bones-annual-golf-classic-2023/
LOCATION:Somerset Hills Country Club\, 180 Mine Mount Rd\, Bernardsville\, New Jersey\, 07924
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231001T000000
DTEND;TZID=America/New_York:20231031T235900
DTSTAMP:20260403T190508
CREATED:20230718T025120Z
LAST-MODIFIED:20230718T025249Z
UID:7953-1696118400-1698796740@softbones.org
SUMMARY:2023 Cannonball 5k Run\, Roll\, or Stroll
DESCRIPTION:It’s time to Run\, Roll or Stroll!\nRegistration for Soft Bones second annual Cannonball 5k Run\, Roll or Stroll is open NOW! \nRegister with the link in our bio and participate in a 5k local to you or virtually. \nThe 5k goes for the entire month of October!
URL:https://softbones.org/event/2023-cannonball-5k/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230930T150000
DTEND;TZID=America/New_York:20230930T160000
DTSTAMP:20260403T190508
CREATED:20230913T045923Z
LAST-MODIFIED:20230913T052829Z
UID:8116-1696086000-1696089600@softbones.org
SUMMARY:Midwest 2 Region Patient Meeting
DESCRIPTION:Region Lead\, Cindy Reasor\, will host a Midwest 2 get-together on September 30\, 2023 immediately following the Unmask HPP event at approximately 3pm EDT at Starbucks\, Pavilion Shopping Center\, 2692 Madison Road Rockwood\, Cincinnati\, OH 45208. All region members are welcome to attend regardless of whether they attend the Unmask HPP event or not. \nRegistration is required and will close September 28\, 2023. \n  \nDate: Saturday\, September 30th\, 2023 \nTime: approximately 3:00PM to 4:00PM \nAddress: Starbucks\, Pavilion Shopping Center\, 2692 Madison Road Rockwood\, Cincinnati\, OH 45208 \nRSVP By: September 28st\, 2023 \nIf you have any questions\, please reach out to cindy@softbones.org \nSponsored in part by Alexion\, AstraZeneca Rare Disease. \nRegister now with this link!
URL:https://softbones.org/event/midwest-2-region-patient-meeting/
LOCATION:Starbucks – Pavilion Shopping Center\, 2692 Madison Rd. Rockwood\, Cincinnati\, OH
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20230930T130000
DTEND;TZID=America/Denver:20230930T140000
DTSTAMP:20260403T190508
CREATED:20230720T000731Z
LAST-MODIFIED:20230902T012556Z
UID:7958-1696078800-1696082400@softbones.org
SUMMARY:Unmask HPP  In-Person: Does Hypophosphatasia (HPP) Play A Role In Your Life?
DESCRIPTION:Register Today For This Informative Webinar. \nPresenter: Eduardo Luna\, MD Endocrinologist \nAre you curious about life changes and the support you have along the way while navigating HPP? That’s why Alexion has invited a physician/specialist and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions! Join to learn more about how hypophosphatasia plays a role in your life. \nThis event is in-person\, in Cincinnati\,OH. \nPresented by Alexion AstraZeneca Rare Disease. \nClick the link below to register.
URL:https://softbones.org/event/unmask-hpp-webinar-does-hypophosphatasia-hpp-play-a-role-in-your-life-3/
LOCATION:Season’s 52\, 3819 Edwards Rd\, Cincinatti\, OH\, 45209\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230923T150000
DTEND;TZID=America/New_York:20230923T160000
DTSTAMP:20260403T190508
CREATED:20230913T052729Z
LAST-MODIFIED:20230915T012039Z
UID:8122-1695481200-1695484800@softbones.org
SUMMARY:Northeast Region Patient Meeting
DESCRIPTION:Northeast Region Lead\, Judith Harris\, will host a Northeast Region get-together on September 23\, 2023 immediately following the Unmask HPP event at approximately 3pm EDT at Honey Joe’s Café located at  5 Broad St Unit 2B\, Stamford\, CT 06901. Refreshments will be served. \n  \nAll region members are welcome to attend regardless of whether they attend the Unmask HPP event or not. \n  \nOneSource Case Manager for the Northeast Region\, Diana Miller\, will be attending. \n  \nRegistration is required and will close on September 21\, 2023. \nDate: Saturday\, September 23rd\, 2023 \nTime: approximately 3:00PM to 4:00PM \nAddress: Honey Joe’s Café located at 5 Broad St Unit 2B\, Stamford\, CT 06901 \nRSVP By: September 21st\, 2023 \nIf you have any questions\, please reach out to judith@softbones.org or cindy@softbones.org \nSponsored in part by Alexion\, AstraZeneca Rare Disease. \nRegister now with this link!
URL:https://softbones.org/event/northeast-region-patient-meeting/
LOCATION:Honey Joe’s Cafe\, 5 Broad St Unit 2B\, Stamford\, CT 06901
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20230923T130000
DTEND;TZID=UTC:20230923T140000
DTSTAMP:20260403T190508
CREATED:20230719T235907Z
LAST-MODIFIED:20230906T230817Z
UID:7956-1695474000-1695477600@softbones.org
SUMMARY:Unmask HPP In-Person: Does Hypophosphatasia (HPP) Play A Role In Your Life?
DESCRIPTION:Register Today For This Informative Webinar. \nPresenter: Eric Rush\, MD\, FAAP\, FACMG\, CCD \nAre you curious about life changes and the support you have along the way while navigating HPP? That’s why Alexion has invited a physician/specialist and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions! Join to learn more about how hypophosphatasia plays a role in your life. \nThis event is in-person\, in Stamford\, CT. \nPresented by Alexion AstraZeneca Rare Disease. \nClick the link below to register.
URL:https://softbones.org/event/unmask-hpp-webinar-does-hypophosphatasia-hpp-play-a-role-in-your-life-2/
LOCATION:Divina Modern Italian\, 275 Summer Street\, Stamford\, CT\, 06901\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230919T183000
DTEND;TZID=America/New_York:20230919T193000
DTSTAMP:20260403T190508
CREATED:20230715T065928Z
LAST-MODIFIED:20230715T070630Z
UID:7944-1695148200-1695151800@softbones.org
SUMMARY:Unmask HPP Webinar: Genetics And HPP
DESCRIPTION:Register Today For This Informative Webinar. \nPresenter: Chad Deal\, MD Rheumatologist \nAre you curious about life changes and the support you have along the way while navigating HPP? That’s why Alexion has invited a physician/specialist and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions! Join to learn more about genetics and HPP. \nPresented by Alexion AstraZeneca Rare Disease.
URL:https://softbones.org/event/unmask-hpp-webinar-does-hypophosphatasia-hpp-play-a-role-in-your-life/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230919T130000
DTEND;TZID=America/New_York:20230919T140000
DTSTAMP:20260403T190508
CREATED:20230804T031346Z
LAST-MODIFIED:20230804T031550Z
UID:8017-1695128400-1695132000@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat
DESCRIPTION:Join the HPP community in an HPP AND ME live chat on Tuesday\, September 19th\, 2023 at 1:00 p.m. EDT. Meet the faces behind the names\, talk about HPP or just life in general\, and connect with others! Click the link below to join the call.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-copy/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230830T130000
DTEND;TZID=America/New_York:20230830T140000
DTSTAMP:20260403T190508
CREATED:20230708T112037Z
LAST-MODIFIED:20230708T112037Z
UID:7942-1693400400-1693404000@softbones.org
SUMMARY:HPP AND ME Zoom Tutorial
DESCRIPTION:Soft Bones will be hosting a HPP AND ME Zoom tutorial on Wednesday\, August 30th\, at 1:00 p.m. EDT. Learn more about the HPP community\, connect with others and learn how to navigate HPP AND ME! Click the link below to join the call.
URL:https://softbones.org/event/hpp-and-me-zoom-tutorial-2/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230829T200000
DTEND;TZID=America/New_York:20230829T210000
DTSTAMP:20260403T190508
CREATED:20230708T111826Z
LAST-MODIFIED:20230708T111826Z
UID:7940-1693339200-1693342800@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat
DESCRIPTION:Join the HPP community in an HPP AND ME live chat on Tuesday\, August 29th\, 2023 at 8:00 p.m. EDT. Meet the faces behind the names\, talk about HPP or just life in general\, and connect with others! Click the link below to join the call.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-4/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230825T173000
DTEND;TZID=America/New_York:20230825T213000
DTSTAMP:20260403T190508
CREATED:20230607T234916Z
LAST-MODIFIED:20230607T234916Z
UID:7889-1692984600-1692999000@softbones.org
SUMMARY:Denim & Diamonds
DESCRIPTION:NEW DATE for Soft Bones Denim & Diamonds event now happening on August 25th\, 2023 from 5:30 p.m.- 9:30 p.m. \nJoin us for a fun night of dancing\, live music\, food\, drinks\, auction items and more! \nRegister with the link below and we’ll see you there! Yee Haw!
URL:https://softbones.org/event/denim-diamonds-2/
LOCATION:Harvest Hall\, Chester\, NJ\, 100 Rte 24\, Chester\, NJ\, 07930\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230822T183000
DTEND;TZID=America/New_York:20230822T193000
DTSTAMP:20260403T190508
CREATED:20230613T005928Z
LAST-MODIFIED:20230613T005928Z
UID:7890-1692729000-1692732600@softbones.org
SUMMARY:Unmask HPP Webinar: Life's Changes And The Support You Have Along The Way
DESCRIPTION:Register Today For This Informative Webinar. \nPresenter: Miladys Palau-Collazo\, MD\, Pediatric Endocrinologist \nAre you curious about life changes and the support you have along the way while navigating HPP? That’s why Alexion has invited a physician/specialist and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions! Join to learn more about tips for traveling with your medication. \nPresented by Alexion AstraZeneca Rare Disease.
URL:https://softbones.org/event/unmask-hpp-webinar-lifes-changes-and-the-support-you-have-along-the-way/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kolkata:20230813T130000
DTEND;TZID=Asia/Kolkata:20230813T130000
DTSTAMP:20260403T190508
CREATED:20230729T024910Z
LAST-MODIFIED:20230729T030708Z
UID:7989-1691931600-1691931600@softbones.org
SUMMARY:Midwest 1 Region Meeting
DESCRIPTION:Join Region Lead Nicole B. for a conversation as stories about living and caring for someone with HPP are shared on Sunday\, August 13\, from 1:00 p.m.- 4:00 p.m. CST!\n\n\nOneSource Case Manager\, Krista Higgins\, will also be in attendance to give an overview of the OneSource program. Refreshments will be served\, and the address will be shared with you upon registration.\n\n\n\nRSVP by August 6\, 2023. The meeting is open to those residing in Illinois\, Indiana\, Iowa\, Minnesota & Wisconsin. Contact Nicole B. for details or with any questions nicole@softbones.org. Register now with this link!
URL:https://softbones.org/event/midwest-1-region-meeting/
LOCATION:Cincinnati\, OH\, Starbucks - Pavilion Shopping Center\, 2692 Madison Rd. Rockwood\, Cincinnati\, OH
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230810T190000
DTEND;TZID=America/New_York:20230810T200000
DTSTAMP:20260403T190508
CREATED:20230607T234314Z
LAST-MODIFIED:20230607T234314Z
UID:7885-1691694000-1691697600@softbones.org
SUMMARY:Region Lead Bi- Monthly Call
DESCRIPTION:FOR SOFT BONES REGION LEADS ONLY: Join the Region Lead bi- monthly call on Thursday August 10th from 7-8 pm EST. \nFor questions reach out to info@softbones.org
URL:https://softbones.org/event/region-lead-bi-monthly-call/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230718T130000
DTEND;TZID=America/New_York:20230718T140000
DTSTAMP:20260403T190508
CREATED:20230629T002914Z
LAST-MODIFIED:20230629T002914Z
UID:7916-1689685200-1689688800@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat
DESCRIPTION:Join the HPP community in an HPP AND ME live chat on Tuesday\, July 18th\, 2023 at 1:00 p.m. EDT. Meet the faces behind the names\, talk about HPP or just life in general\, and connect with others! Click the link below to join the call.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-3/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230704T080000
DTEND;TZID=America/New_York:20230704T090000
DTSTAMP:20260403T190508
CREATED:20230704T034819Z
LAST-MODIFIED:20230704T034819Z
UID:7929-1688457600-1688461200@softbones.org
SUMMARY:EVENT TITLE
DESCRIPTION:GRAPHIC OF EVENT \n  \nANY & ALL INFO OF THE EVENT THAT PEOPLE MUST KNOW
URL:https://softbones.org/event/event-title/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230622T203000
DTEND;TZID=America/New_York:20230622T213000
DTSTAMP:20260403T190508
CREATED:20230325T024558Z
LAST-MODIFIED:20230325T024558Z
UID:7732-1687465800-1687469400@softbones.org
SUMMARY:Unmask HPP Webinar: Tips For Traveling With Your Medication
DESCRIPTION:Register Today For This Informative Webinar. \nPresenter:  Gnanagurudasan Prakasam\, MD\, Pediatric Endocrinology \nAre you navigating an HPP diagnosis? Whether you’re new to HPP or a long-time patient or caregiver\, there’s always more to learn about this disease. That’s why Alexion has invited a physician/specialist and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions! Join to learn more about tips for traveling with your medication. \nPresented by Alexion AstraZeneca Rare Disease.
URL:https://softbones.org/event/unmask-hpp-webinar-tips-for-traveling-with-your-medication-3/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230615T200000
DTEND;TZID=America/New_York:20230615T210000
DTSTAMP:20260403T190508
CREATED:20230524T034237Z
LAST-MODIFIED:20230530T044056Z
UID:7840-1686859200-1686862800@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat
DESCRIPTION:Join the HPP community in an HPP AND ME live chat on June 8th\, 2023 at 8:00 p.m. EDT. Meet the faces behind the names\, talk about HPP or just life in general\, and connect with others! Click the link below to join the call.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-2/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230608T190000
DTEND;TZID=America/New_York:20230608T200000
DTSTAMP:20260403T190508
CREATED:20230607T234029Z
LAST-MODIFIED:20230607T235031Z
UID:7859-1686250800-1686254400@softbones.org
SUMMARY:Region Lead Bi-Monthly Call
DESCRIPTION:FOR SOFT BONES REGION LEADS ONLY: Join the Region Lead bi- monthly call on Thursday June 8th from 7-8 pm EST. \nFor questions reach out to info@softbones.org
URL:https://softbones.org/event/region-lead-meeting/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230602T080000
DTEND;TZID=America/New_York:20230604T170000
DTSTAMP:20260403T190508
CREATED:20230225T020714Z
LAST-MODIFIED:20230316T003903Z
UID:7621-1685692800-1685898000@softbones.org
SUMMARY:2nd Soft Bones International Scientific Meeting 2023
DESCRIPTION:Join Soft Bones at our 2023 Scientific Meeting on June 2-4\, 2023. \n 
URL:https://softbones.org/event/2nd-soft-bones-international-scientific-meeting-2023/
LOCATION:Bethesda\, MD\, United States
ATTACH;FMTTYPE=image/png:https://softbones.org/wp-content/uploads/2023/02/Copy-of-Scientific-Meeting-Logo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230523T190000
DTEND;TZID=America/New_York:20230523T203000
DTSTAMP:20260403T190508
CREATED:20230426T234522Z
LAST-MODIFIED:20230426T234522Z
UID:7790-1684868400-1684873800@softbones.org
SUMMARY:Teen Advisory Council (TAC) Trivia Night
DESCRIPTION:Join in the fun in our virtual Trivia Night Tuesday\, May 23\, 2023\, from 7 pm to 8:30 pm EST. The Teen Advisory Council (TAC) invites you to show off your knowledge and win some great prizes. Please register before 12 pm EST on Tuesday\, May 23\, 2023! 🎲 \nClick the link below to register now. https://app.donorview.com/Event/EventInfo?prm=Fl1VJGyogmJ1FXnB77qRza1JgqsaSij_6zHcUS6WKT02OckMd5fAQJNFWPAaAg9R_w7NQrlffptMOja6fVv8Lug7-Qlv9yAPcO-vg3N1RzgGIogJggupZPpWZT4GAgkqhIQMG7I-7OZy3_w8BnYEgQjxfMsEiySqKpRLqqXPysDz0Nx7BWzhQP1oxRFVZ4uIu3a5x8ozyjgdP7UPPHl1eRHdvsrXiuSwEKK5WtBSMwBljnty48IYI5uD2xhEkmfH0
URL:https://softbones.org/event/teen-advisory-council-tac-trivia-night/
LOCATION:Online
ATTACH;FMTTYPE=image/png:https://softbones.org/wp-content/uploads/2023/04/SOCIAL-Graphic-Teen-Advisory-Council-TAC-Trivia-Night.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230516T193000
DTEND;TZID=America/New_York:20230516T203000
DTSTAMP:20260403T190508
CREATED:20230316T032858Z
LAST-MODIFIED:20230321T063243Z
UID:7684-1684265400-1684269000@softbones.org
SUMMARY:Unmask HPP Webinar: Living with HPP
DESCRIPTION:Register Today For This Informative Webinar. \nPresenter:  Jacqui Kernaghan\, PA- C\, Preventative Medicine \nAre you navigating an HPP diagnosis? Whether you’re new to HPP or a long-time patient or caregiver\, there’s always more to learn about this disease. That’s why Alexion has invited a physician/specialist and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions! Join to learn more about living with HPP. \nPresented by Alexion AstraZeneca Rare Disease.
URL:https://softbones.org/event/unmask-hpp-webinar-living-with-hpp/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230509T200000
DTEND;TZID=America/New_York:20230509T210000
DTSTAMP:20260403T190508
CREATED:20230504T070430Z
LAST-MODIFIED:20230504T070727Z
UID:7812-1683662400-1683666000@softbones.org
SUMMARY:HPP AND ME Zoom Tutorial
DESCRIPTION:Soft Bones will be hosting a HPP AND ME Zoom tutorial on Tuesday\, May 9th\, at 8:00 p.m. EDT. Learn more about the HPP community\, connect with others and learn how to navigate HPP AND ME! Click the link below to join the call.
URL:https://softbones.org/event/hpp-and-me-zoom-tutorial/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230504T150000
DTEND;TZID=America/New_York:20230504T160000
DTSTAMP:20260403T190508
CREATED:20230504T065903Z
LAST-MODIFIED:20230504T070616Z
UID:7809-1683212400-1683216000@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat
DESCRIPTION:  \nJoin the HPP community in an HPP AND ME live chat on May 4\, 2023\, at 3:00 p.m. EDT. Meet the faces behind the names\, talk about HPP or just life in general\, and connect with others! Click the link below to join the call. 
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230421T190000
DTEND;TZID=America/New_York:20230421T203000
DTSTAMP:20260403T190508
CREATED:20230330T005729Z
LAST-MODIFIED:20230406T000049Z
UID:7740-1682103600-1682109000@softbones.org
SUMMARY:Soft Bones Teen Advisory Council (TAC) Trivia Night
DESCRIPTION:  \n \nJoin in the fun of our virtual Trivia Night\, Friday April 21\, 2023 7pm to 8:30pm EST. The Teen Advisory Council (TAC) invites you to show off your knowledge and win some great prizes. Please register before 12pm EST on Friday 21\, 2023.  \n 
URL:https://softbones.org/event/soft-bones-teen-advisory-council-tac-trivia-night/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230419T190000
DTEND;TZID=America/New_York:20230419T200000
DTSTAMP:20260403T190508
CREATED:20230316T032539Z
LAST-MODIFIED:20230321T063222Z
UID:7678-1681930800-1681934400@softbones.org
SUMMARY:Unmask HPP Webinar: Genetics and HPP
DESCRIPTION:Register Today For This Informative Webinar. \nPresenter:  Dmitriy Niyazov\, MD \nAre you navigating an HPP diagnosis? Whether you’re new to HPP or a long-time patient or caregiver\, there’s always more to learn about this disease. That’s why Alexion has invited a physician/specialist and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions! Join to learn more about genetics and HPP. \nPresented by Alexion AstraZeneca Rare Disease.
URL:https://softbones.org/event/unmask-hpp-webinar-genetics-and-hpp/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230412T200000
DTEND;TZID=America/New_York:20230412T210000
DTSTAMP:20260403T190508
CREATED:20230405T233422Z
LAST-MODIFIED:20230405T233422Z
UID:7766-1681329600-1681333200@softbones.org
SUMMARY:HPP AND ME Zoom Meeting
DESCRIPTION:  \n \nJoin the HPP AND ME community members in a live chat via  Zoom on Wednesday\, April 12th\, at 8:00 p.m. EDT! Come together and get to know one another\, meet the faces behind the screen names\, and talk about HPP! \nYou can register for the meeting with the link below. https://us06web.zoom.us/meeting/register/tZErdemtrjouHtYWuxpqbfgQx6XsHXVcDciB#/registration
URL:https://softbones.org/event/hpp-and-me-zoom-meeting/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230310T120000
DTEND;TZID=America/New_York:20230310T130000
DTSTAMP:20260403T190508
CREATED:20230211T053626Z
LAST-MODIFIED:20230211T053626Z
UID:7595-1678449600-1678453200@softbones.org
SUMMARY:HPP TeleECHO: ALPL Variant Database
DESCRIPTION:Join our HPP TeleECHO: ALPL Variant Database on March 10th\, at 12PM EST\, presented by Dr. Wolfgang Hogler. \n\nFor more information\, contact us at ECHO@SoftBones.org or (866)- 827- 9937.
URL:https://softbones.org/event/hpp-teleecho-alpl-variant-database/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230301T190000
DTEND;TZID=America/New_York:20230301T200000
DTSTAMP:20260403T190508
CREATED:20230301T073207Z
LAST-MODIFIED:20230301T073207Z
UID:7643-1677697200-1677700800@softbones.org
SUMMARY:HPP AND ME Tutorial #2
DESCRIPTION:  \n \nJoin Soft Bones HPP AND ME community for a tutorial! \nMarch 1\, 2023 \nSESSION 2: (7:00 p.m.) \n\nhttps://us06web.zoom.us/meeting/register/tZwof-ugqzoiHdygHj7Wi4DKOmB9PADf8Q5F \n\n 
URL:https://softbones.org/event/hpp-and-me-tutorial-2/
LOCATION:Online
END:VEVENT
END:VCALENDAR