Soft Bones

Botox, Brunch & Bubbly
2022-11-20 11:00 - 15:00 (America/New_York) | Enriched Aesthetics, 1098 Mt Kemble Ave, Morristown, NJ, 07960, United States
Bring a friend or two and join us for a Botox, Brunch, and Bubbly party on November 20th from 11AM – 3PM at Enriched Aesthetics in Morristown, NJ. The fundraiser benefits Soft Bones, Inc. Enriched Aesthetics strives to provide an enriching experience, which will enhance and compliment your natural beauty, inspiring you to become the best version of yourself. Registration is required.

Date: Sunday, November 20th, 2022
Time: 11:00 AM – 3:00 PM

Register here by November 15th to get your Botox at the reduced rate of $10/unit (regular price $17/unit).

Proceeds benefit Soft Bones, Inc.: The US Hypophosphatasia Foundation, to support research for a cure and families living with HPP in the United States.

HPP TeleECHO: Hypercalcemia in HPP
2022-11-11 12:00 - 13:00 (America/New_York) | Phoenix, AZ

Unmask HPP Webinar: Tips for Traveling with your Medication
2022-11-10 21:00 - 22:00 (America/New_York) | Phoenix, AZ
Register Today For This Informative Webinar.
Presenter: Lynn Kohlmeier, MD
Are you navigating an HPP diagnosis? Whether you’re new to HPP or a long-time patient or caregiver, there’s always more to learn about this disease. That’s why Alexion has invited a physician/specialist and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions! Join to learn more about Tips for Traveling with your Medicine.
Presented by Alexion AstraZeneca Rare Disease.

World HPP Day
2022-10-30 00:00 - 23:59 (America/New_York) | Phoenix, AZ
This year’s theme for World HPP Day is HPP ON THE MOVE – a celebration of movement both physically and metaphorically.
Whether you choose to get moving by participating in the Cannonball 5k or another form of physical activity – or you start your own movement by educating others – the goal is to create momentum around awareness of hypophosphatasia around the world.
Visit the World HPP Day page to learn about ways you can join the movement.
Let’s Move!

Southeast Region Meet Up
2022-10-22 11:00 - 15:00 (America/New_York)
Join Region Lead Kirsten Mitchell and Blynda Kellner for a conversation as we share stories about living with or caring for someone with HPP. We will have a speaker who will talk about holistic health for those with HPP as well as OneSource Case Manager Dori Conwaywho will provide an overview of the OneSource program.
Click here to view the agenda and register
Sponsored in part by Alexion, AstraZeneca Rare Disease.

Unmask HPP Webinar: Tips for Talking to you HCP
2022-10-20 18:30 - 19:30 (America/New_York) | Phoenix, AZ
Register Today For This Informative Webinar.
Presenter: Steven Petak, MD
Are you navigating an HPP diagnosis? Whether you’re new to HPP or a long-time patient or caregiver, there’s always more to learn about this disease. That’s why Alexion has invited a physician/specialist and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions! Join to learn more about Tips for Talking to you HCP.
Presented by Alexion AstraZeneca Rare Disease.

HPP TeleECHO: Gene Therapy for HPP
2022-10-14 12:00 - 13:00 (America/New_York) | Phoenix, AZ
Virtual educational program for clinicians and researchers.
Presented by: Jose Luis Millan, PhD
Reach out to ECHO@SoftBones.org to get more information and to register. To view the full ECHO schedule click here.

Unmask HPP LIVE in Wisconsin- Does Hypophosphatasia (HPP) Play a Role in Your Life?
2022-10-08 11:00 (America/New_York) | Maggiano’s Little Italy 25500 N. Mayfair Road Wauwatosa, WI 53226, 25500 N. Mayfair Road Wauwatosa, WI 53226, Wauwatosa, WI, 53226, United States
Are you navigating an HPP diagnosis? Whether you’re new to HPP or a long-time patient or caregiver, there’s always more to learn about this disease. That’s why Alexion has invited a physician/specialist and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions!
Presented by Alexion AstraZeneca Rare Disease.

Cannonball 5K Run, Roll, or Stroll
2022-10-01 - 2022-10-31 | Phoenix, AZ
Join us as we come together as an HPP community to raise global awareness of hypophosphatasia.
World HPP Day is our chance as a community to spread awareness for this rare metabolic bone disease and bring everyone together. From patients living with HPP, to caregivers, families, loved ones, researchers and doctors, everyone can get involved! We are stronger together, and when we move, we move as one! There is no correct form of movement, so let’s see you run, roll or stroll!
Click here to learn more and register

Unmask HPP Webinar: Tips For Traveling With Your Medication
2022-05-19 18:00 - 19:00 (Asia/Kolkata) | Phoenix, AZ
Register Today For This Informative Webinar.
Presenter: Susan Hughes, MS, CGC, Genetic Counselor.
Are you navigating an HPP diagnosis? Whether you’re new to HPP or a long-time patient or caregiver, there’s always more to learn about this disease. That’s why Alexion has invited a physician/specialist and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions!
Presented by Alexion Astra Zeneca Rare Disease.

Unmask HPP Webinar: Caring For Someone With HPP
2022-04-30 00:00 - 17:00 (Asia/Karachi)
Register Today For This Informative Webinar
4/30/22 12:00 PM ET
Presenter: Bradley Van Sickle, MD, PhD, Pediatric Endocrinologist
Are you navigating an HPP diagnosis? Whether you’re new to HPP or a long-time patient or caregiver, there’s always more to learn about this disease. That’s why Alexion has invited a physician/specialist and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions!
Presented by Alexion Astra Zeneca Rare Disease.
