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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241003T193000
DTEND;TZID=America/Los_Angeles:20241003T203000
DTSTAMP:20260403T190517
CREATED:20240820T235254Z
LAST-MODIFIED:20240820T235254Z
UID:10416-1727983800-1727987400@softbones.org
SUMMARY:Midwest 2 Region Zoom Meeting and Chat
DESCRIPTION:Do you live in Kentucky\, Michigan\, Ohio\, or West Virginia? \n  \nJoin Region Leads\, Nichole Macknight and Sharon Talkington for a Midwest 2 Zoom Chat on Thursday\, October 3rd at 7:30 PM Eastern. Connect with fellow HPP members in your region. \n  \nRegistration is required. Please register HERE: \n  \nIf you have any questions\, please reach out to Nichole Macknight (nichole@softbones.org)\, Sharon Talkington (sharon@softbones.org)\, or Cindy Reasor (Cindy@SoftBones.org). \n  \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease.
URL:https://softbones.org/event/midwest-2-region-zoom-meeting-and-chat-2/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240929T000000
DTEND;TZID=America/New_York:20241031T000000
DTSTAMP:20260403T190517
CREATED:20240905T121211Z
LAST-MODIFIED:20241026T055602Z
UID:10727-1727568000-1730332800@softbones.org
SUMMARY:2024 Cannonball 5K Run\, Roll\, or Stroll
DESCRIPTION:It’s time to Run\, Roll\, or Stroll!\nRegistration for Soft Bones 3rd annual Cannonball 5K Run\, Roll or Stroll is NOW LIVE! Now until October 31st\, challenge yourself to finish a 5K! Complete the 5K in a single day or pace yourself to hit your goal over the course of the month. Gather your friends and family to participate locally or virtually.  \n  \nSign up directly: HERE \n  \nDid you know you can donate on behalf of someone running\, rolling\, or strolling? Support them during their challenge! Visit our Cannonball 5K page to learn how you can participate and support us!  \n  \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease
URL:https://softbones.org/event/2024-cannonball-5k-run-roll-or-stroll/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240928T190000
DTEND;TZID=America/New_York:20240928T200000
DTSTAMP:20260403T190517
CREATED:20240831T055900Z
LAST-MODIFIED:20240831T060211Z
UID:10709-1727550000-1727553600@softbones.org
SUMMARY:HPP Empowered: September 28\, 2024 at 1:00 PM ET
DESCRIPTION:Register Today For This Informative Webinar. \nHave you or a loved one been diagnosed with hypophosphatasia (HPP)? \nJoin Alexion Pharmaceuticals\, Inc. as they host a LIVE HPP Empowered in-person educational event on Saturday\, September 28th\, 2024\, at 1:00 PM ET. \n\nLocation: Mitchell’s Steakhouse  \n1408 Polaris Pkwy\, Columbus\, OH 43240 \n\nJoin HERE. \n\n\nPresented by Alexion AstraZeneca Rare Disease.
URL:https://softbones.org/event/hpp-empowered-september-28-2024-at-100-pm-et/
LOCATION:Mitchell’s Steakhouse\, 1408 Polaris Pkwy\, Columbus\, OH\, 43240
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240924T150000
DTEND;TZID=America/New_York:20240924T160000
DTSTAMP:20260403T190517
CREATED:20240911T005823Z
LAST-MODIFIED:20240911T005823Z
UID:10742-1727190000-1727193600@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat
DESCRIPTION:Register for your spot today! \n\n\nJoin us on September 24th at 3 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share your experiences with HPP. Registration is required. We hope to see you there! \nClick here to register.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-14/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kolkata:20240923T100000
DTEND;TZID=Asia/Kolkata:20240923T170000
DTSTAMP:20260403T190517
CREATED:20231212T034310Z
LAST-MODIFIED:20240913T014822Z
UID:8590-1727085600-1727110800@softbones.org
SUMMARY:Join us for the 16th Annual Golf Classic 2024 and 1st Annual Pickleball Classic
DESCRIPTION:Join us for our 16th Annual Soft Bones Golf Classic to be held on Monday\, September 23rd\, 2024. This annual fundraiser supports Roger’s grandson Cannon Sittig\, who lives with HPP (pictured in the 4th photo) along with his daughter\, Soft Bones Chairman of the Board and Founder Deborah Nettune Fowler. Also this year\, Somerset Hills has added pickleball courts to their facilities and we are excited to announce our 1st Pickleball Classic will take place on the same day.  \n  \nSoft Bones 16th Annual Golf Classic \nGolfers will enjoy a full day of play on a renowned course in the best ball or scramble format. There will be numerous opportunities to earn prizes for individuals and groups. Participants will have a delicious lunch before teeing off. Cocktails\, drinks\, and snacks will be available throughout the day. Gift certificates for dinner are included to end the day’s outing. \nThank you to Atlantic Health System for continuing to be our tournament sponsor for this important event. We hope you will join us for a day of top-notch golf to support this worthy cause. \n   \nGolf Event Schedule:  \n10:00 AM    Registration/Driving Range open  \n10:30 AM    Luncheon Begins \n11:50 AM    Welcome Ceremony (parking lot near golf cart launch) \n12:00 PM    Shotgun Start \n  \nPlease note that this event is held rain or shine. \n  \nSoft Bones 1st Annual Pickleball Classic \nAs pickleball takes the country by storm\, we invite pickleball enthusiasts to come out and support Soft Bones. There will be a 30 minute warm up with a pro before we start the tournament. Winner of the pickleball tournament will receive a prize. Light courtside refreshments will be served. After play\, guests can enjoy a BBQ lunch. The Pro Shop will be open to all. Please bring your own paddle. Balls will be provided. If you do not have your own\, there will be paddles available to use. \n  \nPickleball Event Schedule:  \n9:00   AM   Registration \n9:30   AM   Pickleball Warm Up with a Pro \n10:00 AM   Pickleball Tournament  \n11:30 AM   Lunch \n  \nRegister now: https://app.donorview.com/l9pWP \n  \nTo register without incurring a fee\, you can sign up online and mail a check\, pay by Venmo at @Soft-Bones (last four digits 1081)\, or through Zelle at Info@SoftBones.org. In the memo section\, please include your full name and write “Soft Bones 2024 Golf Classic”. \n  \nNot a golfer or pickleball player? Consider one of our sponsorships to show your support or to highlight your business.
URL:https://softbones.org/event/soft-bones-16th-annual-golf-classic-2024/
LOCATION:Somerset Hills Country Club\, 180 Mine Mount Rd\, Bernardsville\, New Jersey\, 07924
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240919T190000
DTEND;TZID=America/New_York:20240919T200000
DTSTAMP:20260403T190517
CREATED:20240831T055006Z
LAST-MODIFIED:20240831T055006Z
UID:10705-1726772400-1726776000@softbones.org
SUMMARY:HPP Empowered: September 19\, 2024 at 7:00 PM ET
DESCRIPTION:Register Today For This Informative Webinar. \nHave you or a loved one been diagnosed with hypophosphatasia (HPP)? \nJoin Alexion Pharmaceuticals\, Inc. as they host their HPP Empowered virtual educational event on Thursday\, September 19th\, 2024\, at 7:00 PM ET. \nJoin HERE. \n\n\nPresented by Alexion AstraZeneca Rare Disease.
URL:https://softbones.org/event/hpp-empowered-september-19-2024-at-700-pm-et/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240905T150000
DTEND;TZID=America/New_York:20240905T160000
DTSTAMP:20260403T190517
CREATED:20240823T025307Z
LAST-MODIFIED:20240823T025307Z
UID:10473-1725548400-1725552000@softbones.org
SUMMARY:Appy Hour
DESCRIPTION:The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their health and makes them a valuable partner in research for better HPP treatment and care.  \n  \nCome join us on September 5\, 2024 at 3 PM EDT\, over Zoom\, to learn more about myHPP and how to navigate the app. Learn from tech savvy patient users and feel free to ask questions along the way. Join us in taking actionable steps to transform healthcare. Download the app in the Apple Store or Google Play Store today! \n  \nRegistration is required. Please register here. \n  \nIf you have any questions\, please reach out to Cindy Reasor at Cindy@SoftBones.org.
URL:https://softbones.org/event/appy-hour-6/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240829T200000
DTEND;TZID=America/New_York:20240829T210000
DTSTAMP:20260403T190517
CREATED:20240802T224247Z
LAST-MODIFIED:20240802T224247Z
UID:10298-1724961600-1724965200@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat
DESCRIPTION:Register for your spot today! \n\n\nJoin us on August 29th at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share your experiences with HPP. Registration is required. We hope to see you there! \nClick here to register.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-13/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240822T193000
DTEND;TZID=America/Los_Angeles:20240822T203000
DTSTAMP:20260403T190517
CREATED:20240726T211806Z
LAST-MODIFIED:20240730T013939Z
UID:10207-1724355000-1724358600@softbones.org
SUMMARY:Northeast Region Zoom Meeting and Chat
DESCRIPTION:Do you live in Connecticut\, DC\, Delaware\, Maine\, Maryland\, Massachusetts\, New Hampshire\, New Jersey\, New York\, Pennsylvania\, Rhode Island\, Vermont\, or Virginia?  \n  \nJoin Region Leads\, Judith Harris and Chris Denune\, on Thursday August 22\, 2024 at 7:30 PM Eastern for a Zoom Chat. Come learn more about our Northeast in-person meeting in October and connect with fellow HPP members. \n  \nRegistration is required. Please register HERE: \n  \nIf you have any questions\, please reach out to Judith Harris (Judith@SoftBones.org) or Cindy Reasor (Cindy@SoftBones.org). \n  \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease.
URL:https://softbones.org/event/northeast-region-zoom-meeting-and-chat/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240820T190000
DTEND;TZID=America/New_York:20240820T190000
DTSTAMP:20260403T190517
CREATED:20240820T044758Z
LAST-MODIFIED:20240820T044832Z
UID:10419-1724180400-1724180400@softbones.org
SUMMARY:HPP Empowered: August 20\, 2024 at 7:00 PM (Eastern)
DESCRIPTION:Register Today For This Informative Webinar. \nHave you or a loved one been diagnosed with hypophosphatasia (HPP)? \nJoin Alexion Pharmaceuticals\, Inc. as they host their HPP Empowered virtual educational event on August 20th at 7:00 PM Eastern. Learn more about the event and register below. Register now! \nJoin here: https://hypophosphatasia.com/events \n\n\nPresented by Alexion AstraZeneca Rare Disease.
URL:https://softbones.org/event/hpp-empowered-august-20-2024-at-700-pm-eastern/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240817T120000
DTEND;TZID=America/Chicago:20240817T140000
DTSTAMP:20260403T190517
CREATED:20240615T015732Z
LAST-MODIFIED:20240814T033951Z
UID:9943-1723896000-1723903200@softbones.org
SUMMARY:Midwest 1 Region Patient Meeting
DESCRIPTION:Midwest 1 Region Meet-Up Opportunity  \nDo you live in Illinois\, Indiana\, Iowa\, Minnesota\, or Wisconsin? \n  \nJoin Region Lead\, Nicole Belting\, on Saturday August 17\, 2024 at 12 PM Central for a meet up in Illinois. We will meet at Blackberry Trails Park for lunch. A OneSource Case Manager will be there to field questions\, engage in conversations\, and more. Come outside and enjoy nature. We hope to see you there! This meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease. \n  \nDate: Saturday August 17\, 2024 \nTime: 12 PM  \nAddress: Blackberry Trails Park (Note: plug in 2535 Caliendo Cir\, Montgomery\, IL 60538 at the corner of Griffin Dr. & William Dr.)  \n  \n\nRegistration is required and will close on August 3\, 2024. Please register HERE.  \n\n  \nIf you have any questions\, please reach out to Cindy@SoftBones.org or Nicole@SoftBones.org
URL:https://softbones.org/event/midwest-1-region-patient-meeting/
LOCATION:Blackberry Trails Park\, 2535 Caliendo Cir\, Montgomery\, IL\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240815T200000
DTEND;TZID=America/New_York:20240815T210000
DTSTAMP:20260403T190517
CREATED:20240724T021811Z
LAST-MODIFIED:20240724T021811Z
UID:10221-1723752000-1723755600@softbones.org
SUMMARY:Appy Hour
DESCRIPTION:The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their health and makes them a valuable partner in research for better HPP treatment and care.  \n  \nCome join us on August 15th at 8 PM Eastern\, over Zoom\, to learn more about myHPP and how to navigate the app. Learn from tech savvy patient users and feel free to ask questions along the way. Join us in taking actionable steps to transform healthcare. Download the app in the Apple Store or Google Play Store today! \n  \nRegistration is required. Please register here. \n  \nIf you have any questions\, please reach out to Cindy Reasor at Cindy@SoftBones.org.
URL:https://softbones.org/event/appy-hour-5/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240810T110000
DTEND;TZID=America/New_York:20240810T120000
DTSTAMP:20260403T190517
CREATED:20240724T015456Z
LAST-MODIFIED:20240724T015456Z
UID:10218-1723287600-1723291200@softbones.org
SUMMARY:Appy Hour
DESCRIPTION:The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their health and makes them a valuable partner in research for better HPP treatment and care.  \n  \nCome join us on August 10th at 11 AM Eastern\, over Zoom\, to learn more about myHPP and how to navigate the app. Learn from tech savvy patient users and feel free to ask questions along the way. Join us in taking actionable steps to transform healthcare. Download the app in the Apple Store or Google Play Store today! \n  \nRegistration is required. Please register here. \n  \nIf you have any questions\, please reach out to Cindy Reasor at Cindy@SoftBones.org.
URL:https://softbones.org/event/appy-hour-4/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240730T200000
DTEND;TZID=America/New_York:20240730T210000
DTSTAMP:20260403T190517
CREATED:20240719T071840Z
LAST-MODIFIED:20240719T071840Z
UID:10214-1722369600-1722373200@softbones.org
SUMMARY:Appy Hour
DESCRIPTION:The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their health and makes them a valuable partner in research for better HPP treatment and care.  \n  \nCome join us on July 30th at 8 PM Eastern\, over Zoom\, to learn more about myHPP and how to navigate the app. Learn from tech savvy patient users and feel free to ask questions along the way. Join us in taking actionable steps to transform healthcare. Download the app in the Apple Store or Google Play Store today! \n  \nRegistration is required. Please register here. \n  \nIf you have any questions\, please reach out to Cindy Reasor at Cindy@SoftBones.org.
URL:https://softbones.org/event/appy-hour-3/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240725T190000
DTEND;TZID=America/Los_Angeles:20240725T200000
DTSTAMP:20260403T190517
CREATED:20240620T025026Z
LAST-MODIFIED:20240627T234923Z
UID:10099-1721934000-1721937600@softbones.org
SUMMARY:Northwest Region Zoom Meeting and Chat
DESCRIPTION:Do you live in Alaska\, Idaho\, Northern California\, Montana\, Oregon or Washington?  \n  \nJoin Region Leads\, Hayley Thornton and Ann Haak on July 25th at 7:00PM Pacific. All who register and attend will be in a drawing for a $20 Starbucks gift card. Come meet your newest Region Lead\, Hayley and connect with others in your region.  \n  \nRegistration is required. Please register HERE: \n  \nIf you have any questions\, please reach out to Hayley Thornton (HaleyT@SoftBones.org)\, Ann Haak (Ann@SoftBones.org) or Cindy Reasor (Cindy@SoftBones.org). \n  \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease.
URL:https://softbones.org/event/northwest-region-zoom-meeting-and-chat/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240725T150000
DTEND;TZID=America/New_York:20240725T160000
DTSTAMP:20260403T190517
CREATED:20240620T014303Z
LAST-MODIFIED:20240620T014303Z
UID:10103-1721919600-1721923200@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat
DESCRIPTION:Register for your spot today! \n\n\nJoin us on July 25th at 3 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share your experiences with HPP. Registration is required. We hope to see you there! \nClick here to register.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-12/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240724T150000
DTEND;TZID=America/New_York:20240724T160000
DTSTAMP:20260403T190517
CREATED:20240719T034119Z
LAST-MODIFIED:20240719T034159Z
UID:10210-1721833200-1721836800@softbones.org
SUMMARY:Appy Hour
DESCRIPTION:The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their health and makes them a valuable partner in research for better HPP treatment and care.  \n  \nCome join us on July 24th at 3 PM Eastern\, over Zoom\, to learn more about myHPP and how to navigate the app. Learn from tech savvy patient users and feel free to ask questions along the way. Join us in taking actionable steps to transform healthcare. Download the app in the Apple Store or Google Play Store today! \n  \nRegistration is required. Please register here. \n  \nIf you have any questions\, please reach out to Cindy Reasor at Cindy@SoftBones.org.
URL:https://softbones.org/event/appy-hour-2/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240721T133000
DTEND;TZID=America/Chicago:20240721T163000
DTSTAMP:20260403T190517
CREATED:20240704T043031Z
LAST-MODIFIED:20240704T043031Z
UID:10130-1721568600-1721579400@softbones.org
SUMMARY:Central Region Meeting
DESCRIPTION:  \nCentral Region Meet-Up Opportunity  \nDo you live in Arkansas\, Colorado\, Kansas\, Missouri\, Nebraska\, North Dakota\, Oklahoma\, South Dakota\, Wyoming? \n  \nJoin Soft Bones’s Region Lead\, Kara Schweiss\, for a Central Region Meeting on Sunday\, July 21\, 2024 at Sump Memorial Library. From 1:30 – 4:30 PM\, connect with other members from your region. Lunch will be provided. All Central Region members and families are welcome to come to this local get-together. This is a time to connect and meet your local support system. \n  \nDate: Sunday\, July 21\, 2024 \nTime: 1:30 PM – 4:30 PM Central \nAddress: Sump Memorial Library (South Meeting Room) \n222 N Jefferson St\, Papillion\, NE \n  \nRegistration is required and will close on July 17\, 2024. Register HERE.  \n  \nIf you have any questions\, please reach out to Kara@SoftBones.org or Cindy@SoftBones.org \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease.
URL:https://softbones.org/event/central-region-meeting/
LOCATION:Sump Memorial Library\, 222 N Jefferson St.\, Papillion\, NE\, 68046\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240718T200000
DTEND;TZID=America/New_York:20240718T210000
DTSTAMP:20260403T190517
CREATED:20240709T045612Z
LAST-MODIFIED:20240719T022722Z
UID:10176-1721332800-1721336400@softbones.org
SUMMARY:Appy Hour
DESCRIPTION:The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their health and makes them a valuable partner in research for better HPP treatment and care.  \n  \nCome join us on July 18th at 8 PM Eastern\, over Zoom\, to  learn more about myHPP and how to navigate the app. Learn from tech savvy patient users and feel free to ask questions along the way. Join us in taking actionable steps to transform healthcare. Download the app today in the Apple Store or Google Play Store.  \n  \nRegistration is required. Please register here. \n  \nIf you have any questions\, please reach out to Cindy Reasor at Cindy@SoftBones.org.
URL:https://softbones.org/event/appy-hour/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Anchorage:20240713T100000
DTEND;TZID=America/Anchorage:20240713T120000
DTSTAMP:20260403T190517
CREATED:20240703T050743Z
LAST-MODIFIED:20240709T022048Z
UID:10112-1720864800-1720872000@softbones.org
SUMMARY:Northwest Region Meeting
DESCRIPTION:Northwest Region Meet-Up Opportunity  \nDo you live in Alaska\, Idaho\, Northern California\, Montana\, Oregon or Washington? \n  \nJoin Region Lead\, Ann Haak\, on Saturday\, July 13th in Anchorage\, Alaska. Time and location will be announced soon. Come meet and connect with other members from your region. A OneSource Case Manager will be available to answer questions and provide support. \n  \nDate: Saturday July 13\, 2024 \nTime: 10 AM Alaskan Time Zone \nAddress: 6901 E Tudor Rd\, Anchorage\, AK 99507 \n  \nRegistration is required. The deadline to register is Wednesday\, July 10\, 2024. Please register HERE.  \nIf you have any questions\, please reach out to Ann@SoftBones.org or Cindy@SoftBones.org. \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease.
URL:https://softbones.org/event/northwest-region-meeting/
LOCATION:Kaladi Brothers Coffee\, 6901 E Tudor Rd\, Anchorage\, AK\, 99507\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240712T173000
DTEND;TZID=America/New_York:20240713T170000
DTSTAMP:20260403T190517
CREATED:20230322T230955Z
LAST-MODIFIED:20250813T123051Z
UID:7723-1720805400-1720890000@softbones.org
SUMMARY:2024 Soft Bones National Patient Meeting
DESCRIPTION:Join us for our 2024 Soft Bones National Patient Meeting on July 12th–July 13th\, 2024\, in Mason\, OH. This important event will bring together HPP community members to gain valuable knowledge while connecting with others. There is no cost to attend the meeting. \n  \nMeeting Venue \nGreat Wolf Lodge in Mason\, OH \nAddress: 2501 Great Wolf Dr\, Mason\, OH 45040 \nPhone: 800-913-9653 \n  \nTravel Grant Reimbursement Information \nSoft Bones offers a limited number of travel grant reimbursements for those who need to subsidize the cost of transportation to the meeting. Refer to the travel grant policy for details. Please note that the foundation is a 501c3 nonprofit organization that funds events\, such as this through ongoing fundraising efforts. When requesting a travel grant\, you use your best judgment so the funds can be dispersed based on need. Donations in any amount to help are appreciated. \nBe sure to answer the question regarding a travel grant during registration to indicate interest. Reimbursements are available for U.S. residents. \n  \nContact Us \nRegistration is required and will close on July 1\, 2024. Currently\, there is a waitlist. If you are interested\, please get in touch with us at patientmeeting@softbones.org. \n  \nBrought to you in part by:  \n  \nHeadline Sponsor  \n \n  \nStar Sponsor  \n \nCommunity Builder Sponsors
URL:https://softbones.org/event/national-patient-meeting-2024/
LOCATION:Great Wolf Lodge\, Mason Ohio\, 2501 Great Wolf Dr\, Mason\, OH\, 45040\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240627T190000
DTEND;TZID=America/New_York:20240627T200000
DTSTAMP:20260403T190517
CREATED:20240607T030525Z
LAST-MODIFIED:20240607T030525Z
UID:9900-1719514800-1719518400@softbones.org
SUMMARY:Midwest 2 Region Zoom Meeting and Chat
DESCRIPTION:Do you live in Kentucky\, Michigan\, Ohio\, or West Virginia? \nJoin Region Leads Sharon Talkington and Nichole Macknight for a virtual Zoom Meeting on June 27th at 7 PM Eastern. This is open to all in the Region. As the National Patient Meeting is approaching\, this is a great opportunity to connect with others who will be attending as well. \n  \nRegistration is required. Sign up below: \nhttps://us06web.zoom.us/meeting/register/tZwkc-mtqD8rGd06Nrcw_4sysAgk4WJJOJrh \n  \nIf you have any questions\, please reach out to cindy@softbones.org \n  \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease.
URL:https://softbones.org/event/midwest-2-region-zoom-meeting-and-chat/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240620T200000
DTEND;TZID=America/New_York:20240620T210000
DTSTAMP:20260403T190517
CREATED:20240529T230120Z
LAST-MODIFIED:20240529T230120Z
UID:9813-1718913600-1718917200@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat
DESCRIPTION:Register for your spot today! \n\n\nJoin us on June 20th at 8:00 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share your experiences with HPP. Registration is required. We hope to see you there! \nClick here to register.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-11/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240612T200000
DTEND;TZID=America/New_York:20240612T210000
DTSTAMP:20260403T190517
CREATED:20240530T215826Z
LAST-MODIFIED:20240530T220302Z
UID:9812-1718222400-1718226000@softbones.org
SUMMARY:Midwest 1 Region Zoom Meeting and Chat
DESCRIPTION:Do you live in Illinois\, Indiana\, Iowa\, Minnesota\, or Wisconsin? \nJoin Region Leads\, Cindy Reasor and Nicole Belting\, for a virtual Zoom Meeting on June 12th at 8 PM Eastern/7 PM Central. As the National Patient Meeting is approaching\, this is your opportunity to connnect with others who will be attending. This is open to all in the Region even if you are not attending the NPM in Mason\, OH. \n  \nRegistration is required. Sign up below: \nhttps://us06web.zoom.us/meeting/register/tZMtf-2upzgqHtOnC3y1jJWLaGaCRwCJWFP0 \n  \nIf you have any questions\, please reach out to cindy@softbones.org \n  \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease.
URL:https://softbones.org/event/midwest-1-region-zoom-meeting-and-chat/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240609T190000
DTEND;TZID=America/Chicago:20240609T200000
DTSTAMP:20260403T190517
CREATED:20240430T231057Z
LAST-MODIFIED:20240502T231706Z
UID:9453-1717959600-1717963200@softbones.org
SUMMARY:Southwest Region Zoom Meeting and Chat
DESCRIPTION:Do you live in Arizona\, Hawaii\, Nevada\, New Mexico\, Southern California\, or Utah? \nJoin Region Leads Amy Britt and Sue Krug for a Region Zoom Meeting/Chat on June 9\, 2024\, at 7 PM Mountain Time/6 PM Pacific Time. Connect and chat with local members about life and HPP. Registration is required. We hope to see you there! \n  \nRegistration is required. Register below: https://us06web.zoom.us/meeting/register/tZIocuquqDkjHdcjnzSyPYHoLiDnBkBrA75U \n  \nIf you have any questions\, please reach out to cindy@softbones.org \n  \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease.
URL:https://softbones.org/event/southwest-region-zoom-meeting-and-chat/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240518T173000
DTEND;TZID=America/New_York:20240518T213000
DTSTAMP:20260403T190517
CREATED:20231005T043821Z
LAST-MODIFIED:20240514T022654Z
UID:8220-1716053400-1716067800@softbones.org
SUMMARY:Denim & Diamonds - Registration Open
DESCRIPTION:Registration is now open! It’s time to put on your cowboy boots and dance for a great cause! Join us for the 2nd Annual Soft Bones Denim & Diamonds fundraiser on Saturday\, May 18th\, 2024\, at Alstede Farms’ Harvest Hall\, in Chester\, NJ. There will be live music by Glenn Roberts’s Cranked Up Country Band\, dancing\, auction items\, games\, a campfire\, and more! \n  \nRegister for Denim and Diamonds below or pay at the door: \nhttps://app.donorview.com/r3Rwk \n  \nCan’t attend but still want to donate to Soft Bones? Donate an auctionable item. Contact Lucy at Lucy@softbones.org for more information.
URL:https://softbones.org/event/denim-diamonds-3/
LOCATION:Harvest Hall\, Chester\, NJ\, 100 Rte 24\, Chester\, NJ\, 07930\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240516T130000
DTEND;TZID=America/New_York:20240516T140000
DTSTAMP:20260403T190517
CREATED:20240502T232904Z
LAST-MODIFIED:20240503T013153Z
UID:9450-1715864400-1715868000@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat
DESCRIPTION:Register for your spot today! \n\n\nJoin us on May 16th at 1:00 PM EDT for an HPP AND ME Zoom Chat. Connect with others and share your experiences with HPP. Registration is required. We hope to see you there! \nClick here to register.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-10/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240423T190000
DTEND;TZID=America/New_York:20240423T210000
DTSTAMP:20260403T190517
CREATED:20240325T215619Z
LAST-MODIFIED:20240325T215658Z
UID:9238-1713898800-1713906000@softbones.org
SUMMARY:Southeast Region Meeting/Chat
DESCRIPTION:Do you live in Alabama\, Florida\, Georgia\, Mississippi North Carolina\, South Carolina\, or Tennessee?  \nThen\, join Region Leads\, Blynda Kellner and Scott Galvin for a Region Zoom Meeting/Chat on April 24\, 2024\, at 7 PM Eastern. This is an opportunity to meet the newest Region Lead\, Scott while conversing with HPP members in the Region. Join in on the conversation! \nRegistration is required. Please register using the link here.  
URL:https://softbones.org/event/southeast-region-meeting-chat/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240422T200000
DTEND;TZID=America/New_York:20240422T210000
DTSTAMP:20260403T190517
CREATED:20240314T054342Z
LAST-MODIFIED:20240314T054342Z
UID:9214-1713816000-1713819600@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat
DESCRIPTION:Register for your spot today! \n\n\nYou are invited to our next HPP AND ME Zoom Chat on April 22\, 2024\, at 8 PM Eastern. Meet others within the HPP Community and connect. Come join the conversation! \nClick here to register.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-9/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240409T150000
DTEND;TZID=America/New_York:20240409T160000
DTSTAMP:20260403T190517
CREATED:20240314T054842Z
LAST-MODIFIED:20240314T054842Z
UID:9216-1712674800-1712678400@softbones.org
SUMMARY:HPP AND ME Zoom Tutorial
DESCRIPTION:Register for your spot today! \nSoft Bones will be hosting an HPP AND ME Zoom Tutorial on April 9\, 2024\, at 3 PM Eastern. Learn how to navigate our community forum and join the conversation. Registration is required. We hope to see you there! \nClick here to register.
URL:https://softbones.org/event/hpp-and-me-zoom-tutorial-5/
LOCATION:Online
END:VEVENT
END:VCALENDAR