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HPP TeleECHO: Gene Therapy for HPP

Phoenix, AZ

Virtual educational program for clinicians and researchers.  Presented by: Jose Luis Millan, PhD Reach out to ECHO@SoftBones.org to get more information and to register. To view…

Unmask HPP Webinar: Tips for Talking to you HCP

Phoenix, AZ

Register Today For This Informative Webinar. Presenter:  Steven Petak, MD Are you navigating an HPP diagnosis? Whether you’re new to HPP or a long-time patient…

Free

Southeast Region Meet Up

Join Region Lead Kirsten Mitchell and Blynda Kellner for a conversation as we share stories about living with or caring for someone with HPP. We will…

World HPP Day

Phoenix, AZ

This year’s theme for World HPP Day is HPP ON THE MOVE – a celebration of movement both physically and metaphorically. Whether you choose to…

Botox, Brunch & Bubbly

Enriched Aesthetics 1098 Mt Kemble Ave, Morristown, NJ, United States

Bring a friend or two and join us for a Botox, Brunch, and Bubbly party on November 20th from 11AM - 3PM at Enriched Aesthetics in Morristown,…

HPP TeleECHO: Eye Findings in Hypophosphatasia

Online

Join our HPP TeleECHO: Eye Findings in Hypophosphatasia on January 13th, 2023 at 12PM EST, presented by Mark S. Rollo, O.D.Dr. For more information, contact…

National Patient Meeting 2023

Phoenix, Arizona

Join us for our 2023 National Patient Meeting happening on February 17-18 in Phoenix, Arizona! This important event will bring the HPP community together to…

Rare Disease Day 2023

Online

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. SHARE YOUR COLOURS