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UID:12898-1759276800-1761868800@softbones.org
SUMMARY:2025 Cannonball 5K Run\, Roll\, or Stroll
DESCRIPTION:Ready! Set! Go!\nRegistration is now open for the 4th Annual Cannonball 5K Run\, Roll or Stroll. From now until October 31st\, challenge yourself and friends to finish a 5K! Complete this in a single day or pace yourself to hit your goal. Gather your friends and family to participate locally or virtually.  \n  \nSign up directly: HERE \n  \nDid you know you can donate on behalf of someone running\, rolling\, or strolling? Support them during their challenge! Visit our Cannonball 5K page to learn how you can participate and support us!  \n  \nThis event is sponsored in part by Alexion\, AstraZeneca Rare Disease
URL:https://softbones.org/event/2025-cannonball-5k-run-roll-or-stroll/
LOCATION:Online
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DTSTART;VALUE=DATE:20251030
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UID:13161-1761782400-1761868799@softbones.org
SUMMARY:World HPP Day - October 30\, 2025
DESCRIPTION:We are getting ready for World HPP Day\, recognized on October 30th. This is a time for the HPP community to come together and raise awareness about hypophosphatasia (HPP). \nThis year\, we celebrate the progress we’ve made\, but recognize how far we still have to go in understanding the impact of low alkaline phosphatase (ALP) in the body and how it can go undetected for many years. \n\nWhen something is glaringly present and not addressed\, we say there’s an “elephant in the room.” However\, with our HPP mascot\, the HIPPO\, it’s time to acknowledge the “HIPPO in the room.” \n\nVisit our page to learn how you can get involved HERE. \n\nTogether\, we can raise awareness and identify the Hippo in the room!
URL:https://softbones.org/event/world-hpp-day-october-30-2025/
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UID:13159-1761829200-1761832800@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat - October 30\, 2025
DESCRIPTION:Register for your spot today! \n\n\nJoin us on October 30\, 2025\, at 1 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share your experiences with HPP. Registration is required. We hope to see you there! \nClick here to register.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-october-30-2025/
LOCATION:Online
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