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X-WR-CALDESC:Events for Soft Bones
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UID:12898-1759276800-1761868800@softbones.org
SUMMARY:2025 Cannonball 5K Run\, Roll\, or Stroll
DESCRIPTION:Ready! Set! Go!\nRegistration is now open for the 4th Annual Cannonball 5K Run\, Roll or Stroll. From now until October 31st\, challenge yourself and friends to finish a 5K! Complete this in a single day or pace yourself to hit your goal. Gather your friends and family to participate locally or virtually.  \n  \nSign up directly: HERE \n  \nDid you know you can donate on behalf of someone running\, rolling\, or strolling? Support them during their challenge! Visit our Cannonball 5K page to learn how you can participate and support us!  \n  \nThis event is sponsored in part by Alexion\, AstraZeneca Rare Disease
URL:https://softbones.org/event/2025-cannonball-5k-run-roll-or-stroll/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251025T110000
DTEND;TZID=America/New_York:20251025T130000
DTSTAMP:20250919T132624Z
CREATED:20250919T130814Z
LAST-MODIFIED:20250919T132624Z
UID:12902-1761390000-1761397200@softbones.org
SUMMARY:Join Us for an In-Person Midwest 1 and Midwest 2 Region Meeting - October 25\, 2025
DESCRIPTION:Do you live in Illinois\, Indiana\, Iowa\, Kentucky\, Michigan\, Minnesota\, Ohio\, West Virginia\, or Wisconsin? \n  \nJoin us in Madison\, IN! \n  \nJoin Midwest 1 Region Lead\, Cindy R.\, and Midwest 2 Region Lead\, Jennifer W.\, for a luncheon on October 25\, 2025\, from 11 AM – 1 PM Eastern. Connect with patients from your region and neighboring states\, too! Lunch will be provided. \n  \nRegistration is required and will close on October 19th. Please register HERE. \n  \nFollowing the meeting\, attendees can participate in our Annual Cannonball 5K Run\, Roll\, or Stroll. Learn how you can participate HERE. \n  \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease. If you have any questions\, please reach out to Cindy@SoftBones.org.
URL:https://softbones.org/event/join-us-for-an-in-person-midwest-1-and-midwest-2-region-meeting-october-25-2025/
LOCATION:MA
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BEGIN:VEVENT
DTSTART;TZID=America/Denver:20251025T110000
DTEND;TZID=America/Denver:20251025T140000
DTSTAMP:20250917T123546Z
CREATED:20250827T162801Z
LAST-MODIFIED:20250917T123546Z
UID:12710-1761390000-1761400800@softbones.org
SUMMARY:Join Us for an In-Person Southwest Region Meeting - October 25\, 2025
DESCRIPTION:Calling all HPP families from Arizona\, Hawaii\, Nevada\, New Mexico\, Southern California\, and Utah. \n  \nMeet us in Tempe\, AZ! \n  \nJoin Southwest Region Leads for a luncheon on Saturday\, October 25\, 2025\, from 11 AM – 2 PM MST. \n  \nAll Southwest Region members and families are welcome. Dr. Pamela Smith from Phoenix Children’s Hospital will be presenting. OneSource Case Managers\, Joan Gustin and Angela Corso\, will be there to chat and field questions. Light lunch/finger foods and soft drinks will be served. We hope to see you there!  \n  \nRegistration is required and will close on October 11\, 2025. Please register HERE.  \n  \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease. If you have any questions\, please reach out to Cindy@SoftBones.org.
URL:https://softbones.org/event/join-us-for-an-in-person-southwest-region-meeting-october-25-2025/
LOCATION:MA
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251025T113000
DTEND;TZID=America/New_York:20251025T140000
DTSTAMP:20251002T205611Z
CREATED:20251002T200218Z
LAST-MODIFIED:20251002T205611Z
UID:13141-1761391800-1761400800@softbones.org
SUMMARY:Join Us for a  In-Person Midwest 1 Region Meeting - October 25\, 2025
DESCRIPTION:Do you live in Illinois\, Indiana\, Iowa\, Minnesota\, or Wisconsin?  \n  \nJoin us in Madison\, WI! \n  \nRegion Leads Gerald G. and Jan R. will be hosting a luncheon on October 25\, 2025 from 11:30 AM – 2:00 PM Central. All Midwest 1 Region members and families are welcome to learn more about your local HPP support system and connect with fellow HPP families. Lunch will be provided. \n  \nRegistration is required and will close on October 19th. Please register HERE. \n  \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease. If you have any questions\, please reach out to Cindy@SoftBones.org.
URL:https://softbones.org/event/join-us-for-a-midwest-1-region-in-person-meeting-october-25-2025/
LOCATION:MA
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