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DTSTART;VALUE=DATE:20250228
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UID:11344-1740700800-1740787199@softbones.org
SUMMARY:Rare Disease Day- One Month Away!
DESCRIPTION:We are one month away from Rare Disease Day! \nRare disease affects 1 in 10 Americans. Did you know many great organizations are supporting those living with rare diseases? This year we will be highlighting organizations and partners that help to identify the challenges and address the needs of the rare disease population. \nVisit our Rare Disease Day page to learn about each and how you can get involved on February 28th HERE.
URL:https://softbones.org/event/rare-disease-day-save-the-date/
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UID:11547-1740747600-1740751200@softbones.org
SUMMARY:Show Your Stripes - HPP Chat
DESCRIPTION:Come celebrate Rare Disease Day and Show Your Stripes with us at our Virtual Rare Disease Day HPP Zoom Chat! \nJoin us on February 28\, 2025\, from 1-2 PM Eastern. Let’s connect\, raise awareness\, and show our stripes. \nRegistration is required. Please register HERE!
URL:https://softbones.org/event/rare-disease-day-hpp-zoom-chat/
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