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SUMMARY:Teen Advisory Council Event - What is Advocacy and Why is it Important?
DESCRIPTION:Calling all Teen Advisory Council (TAC) teens!  \n  \nPlease join us on November 19th at 8 PM for an exciting presentation by patient and advocate Matt Hay from Alexion. During this meeting\, learn what advocacy is and why it is important. Don’t miss this opportunity! TAC members\, please check your emails to reserve your spot. \n  \nMatt Hay was a college student when diagnosed with a rare disease called Neurofibromatosis Type 2 (NF2) that would eventually take his hearing\, balance\, and facial movement. He turned his decades of struggle into an opportunity to help others live better lives. \n  \nMatt is a best-selling author\, TEDx speaker\, congressional lobbyist\, public health doctoral candidate\, an Ironman Triathlon and Boston Marathon finisher\, and serves as the US Director of Advocacy for a rare disease biopharma company. He lives in Westfield\, Indiana\, with his wife (whom he’s quick to point out is the hero of his story) and their three children. \n\n  \n\nInterested in joining TAC? Please contact us HERE for more information. TAC is sponsored in part by Alexion\, AstraZeneca Rare Disease.
URL:https://softbones.org/event/teen-advisory-council-event-what-is-advocacy-and-why-is-it-important/
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