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UID:10727-1727568000-1730332800@softbones.org
SUMMARY:2024 Cannonball 5K Run\, Roll\, or Stroll
DESCRIPTION:It’s time to Run\, Roll\, or Stroll!\nRegistration for Soft Bones 3rd annual Cannonball 5K Run\, Roll or Stroll is NOW LIVE! Now until October 31st\, challenge yourself to finish a 5K! Complete the 5K in a single day or pace yourself to hit your goal over the course of the month. Gather your friends and family to participate locally or virtually.  \n  \nSign up directly: HERE \n  \nDid you know you can donate on behalf of someone running\, rolling\, or strolling? Support them during their challenge! Visit our Cannonball 5K page to learn how you can participate and support us!  \n  \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease
URL:https://softbones.org/event/2024-cannonball-5k-run-roll-or-stroll/
LOCATION:Online
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DTSTART;TZID=America/New_York:20241029T073000
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DTSTAMP:20260502T030904
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UID:10954-1730187000-1730190600@softbones.org
SUMMARY:Behind the Mystery of Hypophosphatasia
DESCRIPTION:We are excited to share that our very own Deborah Fowler and Cindy Reasor will be featured on “Behind the Mystery of Hypophosphatasia”. \n  \nBehind the Mystery™ is a TV series dedicated to raising awareness about rare and genetic diseases through patient storytelling. Hear from four guests as they discuss HPP. \n  \nThis episode will be aired on Lifetime on Monday\, October 21th and Tuesday\, October 29th at 7:30 AM ET. \n  \nIt will also available on demand on The Balancing Act website or The Balancing Act YouTube Channel.
URL:https://softbones.org/event/behind-the-mystery-of-hypophosphatasia/
LOCATION:Online
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DTSTART;TZID=Asia/Kolkata:20241029T190000
DTEND;TZID=Asia/Kolkata:20241029T210000
DTSTAMP:20260502T030904
CREATED:20241026T062916Z
LAST-MODIFIED:20241026T063900Z
UID:11105-1730228400-1730235600@softbones.org
SUMMARY:"The Psychological Impact of Living With HPP" Free Webinar
DESCRIPTION:Join the Canadian Consortium for Children’s Bone Health (CCCBH) for a webinar on October 29\, 2024\, from 7:00 PM – 9:00 PM Eastern. \n  \nThis webinar will feature Dr. Natalie Truba\, a Pediatric Psychologist\, Psychology\, and Neuropsychology at Nationwide Children’s Hospital\, Columbus\, Ohio\, entitled “The Psychological Impact of Living With HPP”. Following the meeting\, stay for an “Ask Me Anything” session with medical experts\, and a virtual “Catch-Up Over Coffee” with the HPP Community \n  \nThis is a free online webinar but registration is required. Please register HERE. \n  \nThis is part of the 2024 CARDS Virtual Series in partnership with Soft Bones Canada.
URL:https://softbones.org/event/the-psychological-impact-of-living-with-hpp-free-webinar/
LOCATION:Online
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