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X-WR-CALDESC:Events for Soft Bones
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UID:10727-1727568000-1730332800@softbones.org
SUMMARY:2024 Cannonball 5K Run\, Roll\, or Stroll
DESCRIPTION:It’s time to Run\, Roll\, or Stroll!\nRegistration for Soft Bones 3rd annual Cannonball 5K Run\, Roll or Stroll is NOW LIVE! Now until October 31st\, challenge yourself to finish a 5K! Complete the 5K in a single day or pace yourself to hit your goal over the course of the month. Gather your friends and family to participate locally or virtually.  \n  \nSign up directly: HERE \n  \nDid you know you can donate on behalf of someone running\, rolling\, or strolling? Support them during their challenge! Visit our Cannonball 5K page to learn how you can participate and support us!  \n  \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease
URL:https://softbones.org/event/2024-cannonball-5k-run-roll-or-stroll/
LOCATION:Online
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UID:10951-1729495800-1729499400@softbones.org
SUMMARY:Behind the Mystery of Hypophosphatasia
DESCRIPTION:We are excited to share that our very own Deborah Fowler and Cindy Reasor will be featured on “Behind the Mystery of Hypophosphatasia”. \n  \nBehind the Mystery™ is a TV series dedicated to raising awareness about rare and genetic diseases through patient storytelling. Hear from four guests as they discuss HPP. \n  \nThis episode will be aired on Lifetime on Monday\, October 21th and Tuesday\, October 29th at 7:30 AM ET. \n  \nIt will also available on demand on The Balancing Act website or The Balancing Act YouTube Channel.
URL:https://softbones.org/event/behind-the-mystery-of-hypoposphatasia/
LOCATION:Online
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