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DTSTART;TZID=America/New_York:20240929T000000
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UID:10727-1727568000-1730332800@softbones.org
SUMMARY:2024 Cannonball 5K Run\, Roll\, or Stroll
DESCRIPTION:It’s time to Run\, Roll\, or Stroll!\nRegistration for Soft Bones 3rd annual Cannonball 5K Run\, Roll or Stroll is NOW LIVE! Now until October 31st\, challenge yourself to finish a 5K! Complete the 5K in a single day or pace yourself to hit your goal over the course of the month. Gather your friends and family to participate locally or virtually.  \n  \nSign up directly: HERE \n  \nDid you know you can donate on behalf of someone running\, rolling\, or strolling? Support them during their challenge! Visit our Cannonball 5K page to learn how you can participate and support us!  \n  \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease
URL:https://softbones.org/event/2024-cannonball-5k-run-roll-or-stroll/
LOCATION:Online
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DTSTART;TZID=America/New_York:20241016T190000
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DTSTAMP:20260531T002651
CREATED:20240911T005725Z
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UID:10740-1729105200-1729108800@softbones.org
SUMMARY:Appy Hour
DESCRIPTION:The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their health and makes them a valuable partner in research for better HPP treatment and care.  \n  \nCome join us on October 16\, 2024 at 7 PM Eastern\, over Zoom\, to learn more about myHPP and how to navigate the app. Learn from tech savvy patient users and feel free to ask questions along the way. Join us in taking actionable steps to transform healthcare. Download the app in the Apple Store or Google Play Store today! \n  \nRegistration is required. Please register here. \n  \nIf you have any questions\, please reach out to Cindy Reasor at Cindy@SoftBones.org.
URL:https://softbones.org/event/appy-hour-7/
LOCATION:Online
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