BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Soft Bones - ECPv6.15.20//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Soft Bones
X-ORIGINAL-URL:https://softbones.org
X-WR-CALDESC:Events for Soft Bones
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20220313T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20221106T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231022T130000
DTEND;TZID=America/New_York:20231121T150000
DTSTAMP:20260509T181233
CREATED:20231014T042720Z
LAST-MODIFIED:20231014T042720Z
UID:8267-1697979600-1700578800@softbones.org
SUMMARY:2023 Cannonball 5k Run\, Roll\, or Stroll - Live in New Jersey
DESCRIPTION:It’s time to Run\, Roll or Stroll in person in New Jersey!\nLooking for something to do on Sunday\, October 22nd? Join us to walk or run a 5k while supporting Soft Bones We will meet at Giralda Farms in Madison\, NJ near the St. Huberts entrance at 1:00 pm. Donuts and cider will be served. Proceeds benefit Soft Bones and patients living with hypophosphatasia.\n\n Register here for Cannonball 5k and select team NJ Cannonballers.
URL:https://softbones.org/event/2023-cannonball-5k-run-roll-or-stroll-live-in-new-jersey/
LOCATION:Giralda Farms\, Madison\, NJ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231116T190000
DTEND;TZID=America/New_York:20231116T200000
DTSTAMP:20260509T181233
CREATED:20230829T005256Z
LAST-MODIFIED:20231018T050615Z
UID:8059-1700161200-1700164800@softbones.org
SUMMARY:Unmask HPP Webinar:  Living with HPP
DESCRIPTION:Register Today For This Informative Webinar. \nPresenter: Laura Cross\, MS\, CGC \nAre you navigating an HPP (hypophosphatasia) diagnosis?  Whether you’re new to HPP or a long-time patient or caregiver\, there’s always more to learn about this disease. That’s why Alexion invited a medical professional/a physician and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions! Join to learn more about living with HPP. \nPresented by Alexion AstraZeneca Rare Disease.
URL:https://softbones.org/event/unmask-hpp-webinar-living-with-hpp-2/
LOCATION:Online
END:VEVENT
END:VCALENDAR