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X-WR-CALDESC:Events for Soft Bones
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DTSTART;TZID=America/New_York:20231001T000000
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UID:7953-1696118400-1698796740@softbones.org
SUMMARY:2023 Cannonball 5k Run\, Roll\, or Stroll
DESCRIPTION:It’s time to Run\, Roll or Stroll!\nRegistration for Soft Bones second annual Cannonball 5k Run\, Roll or Stroll is open NOW! \nRegister with the link in our bio and participate in a 5k local to you or virtually. \nThe 5k goes for the entire month of October!
URL:https://softbones.org/event/2023-cannonball-5k/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231021T120000
DTEND;TZID=America/New_York:20231021T140000
DTSTAMP:20260613T235640
CREATED:20231005T042518Z
LAST-MODIFIED:20231006T002336Z
UID:8215-1697889600-1697896800@softbones.org
SUMMARY:Midwest 2 Region Patient Meeting
DESCRIPTION:  \nRegion Lead\, Cindy Reasor\, will host a Midwest 1 get-together on Saturday\, October 21st\, 2023 from 12-2PM at Lake Iola- Interurban Shelter\, William H. Graham Park at N. Bond St.\, Scottsburg\, IN 47170. Lunch will be served. All Midwest 1 region members and families are welcome. \nAfter the get-together all those who want to participate can join us for a Cannonball 5k Run\, Roll\, Stroll on the walking path around the lake from around 2-4PM. Water and Gatorade will be on hand. Coffee and warm cider and doughnuts to be served at the conclusion. \nThis portion of the region meetup is open to the public as well- so invite friends and family- we will all meetup at 2PM at the Lake Iola- Interurban Shelter\, William H. Graham Park! Separate registration is required to participate in the Cannonball 5k Run\, Roll\, Stroll. \n\nRegistration is required and will close on October 13th\, 2023.\nDate: Saturday\, October 21st\, 2023 \nTime: 12PM to 4PM \nAddress: Lake Iola- Interurban Shelter\, William H. Graham Park at N. Bond St.\, Scottsburg\, IN 47170 \nIf you have any questions\, please reach out to cindy@softbones.org \nSponsored in part by Alexion\, AstraZeneca Rare Disease. \nRegister now with this link!
URL:https://softbones.org/event/midwest-2-region-patient-meeting-copy/
LOCATION:Lake Iola- Interurban Shelter\, William H. Graham Park at N. Bond St.\, Scottsburg\, IN 47170
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DTSTART;TZID=America/Los_Angeles:20231021T130000
DTEND;TZID=America/Los_Angeles:20231021T140000
DTSTAMP:20260613T235640
CREATED:20230725T042825Z
LAST-MODIFIED:20231018T051303Z
UID:7977-1697893200-1697896800@softbones.org
SUMMARY:Unmask HPP Educational Event: Does Hypophosphatasia(HPP) Play A Role In Your Life?
DESCRIPTION:  \nRegister Today For This Informative In Person Event. \nPresenter: Aristides Maniatis\, MD\, FAA\, Endocrinologist \nAre you curious about life changes and the support you have along the way while navigating HPP? That’s why Alexion has invited a physician/specialist and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions! Join to learn more about how HPP plays a role in your life. \nPresented by Alexion AstraZeneca Rare Disease.
URL:https://softbones.org/event/unmask-hpp-educational-event-does-hypophosphatasiahpp-play-a-role-in-your-life-2/
LOCATION:Seasons 52\, 2502 E Camelback Road Suite 140\, Phoenix\, AZ\, 85016
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