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UID:7953-1696118400-1698796740@softbones.org
SUMMARY:2023 Cannonball 5k Run\, Roll\, or Stroll
DESCRIPTION:It’s time to Run\, Roll or Stroll!\nRegistration for Soft Bones second annual Cannonball 5k Run\, Roll or Stroll is open NOW! \nRegister with the link in our bio and participate in a 5k local to you or virtually. \nThe 5k goes for the entire month of October!
URL:https://softbones.org/event/2023-cannonball-5k/
LOCATION:Online
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DTSTART;TZID=America/New_York:20231018T213000
DTEND;TZID=America/New_York:20231018T223000
DTSTAMP:20260420T101752
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UID:8053-1697664600-1697668200@softbones.org
SUMMARY:Unmask HPP Webinar: Tips for Traveling with your Medication
DESCRIPTION:  \n\n \nRegister Today For This Informative Webinar. \nPresenter: Leila Chaychi\, MD\, Endocrinologist \nAre you navigating an HPP (hypophosphatasia) diagnosis?  Whether you’re new to HPP or a long-time patient or caregiver\, there’s always more to learn about this disease. That’s why Alexion invited a medical professional/a physician and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions! Join to learn more about Tips for Traveling with your Medication. \nPresented by Alexion AstraZeneca Rare Disease.
URL:https://softbones.org/event/unmask-hpp-webinar-tips-for-traveling-with-your-medication-4/
LOCATION:Online
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