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SUMMARY:Unmask HPP In-Person: Does Hypophosphatasia (HPP) Play A Role In Your Life?
DESCRIPTION:Register Today For This Informative Webinar. \nPresenter: Eric Rush\, MD\, FAAP\, FACMG\, CCD \nAre you curious about life changes and the support you have along the way while navigating HPP? That’s why Alexion has invited a physician/specialist and a real patient living with HPP to “unmask” HPP by presenting at this educational event and answering your most pressing questions! Join to learn more about how hypophosphatasia plays a role in your life. \nThis event is in-person\, in Stamford\, CT. \nPresented by Alexion AstraZeneca Rare Disease. \nClick the link below to register.
URL:https://softbones.org/event/unmask-hpp-webinar-does-hypophosphatasia-hpp-play-a-role-in-your-life-2/
LOCATION:Divina Modern Italian\, 275 Summer Street\, Stamford\, CT\, 06901\, United States
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SUMMARY:Northeast Region Patient Meeting
DESCRIPTION:Northeast Region Lead\, Judith Harris\, will host a Northeast Region get-together on September 23\, 2023 immediately following the Unmask HPP event at approximately 3pm EDT at Honey Joe’s Café located at  5 Broad St Unit 2B\, Stamford\, CT 06901. Refreshments will be served. \n  \nAll region members are welcome to attend regardless of whether they attend the Unmask HPP event or not. \n  \nOneSource Case Manager for the Northeast Region\, Diana Miller\, will be attending. \n  \nRegistration is required and will close on September 21\, 2023. \nDate: Saturday\, September 23rd\, 2023 \nTime: approximately 3:00PM to 4:00PM \nAddress: Honey Joe’s Café located at 5 Broad St Unit 2B\, Stamford\, CT 06901 \nRSVP By: September 21st\, 2023 \nIf you have any questions\, please reach out to judith@softbones.org or cindy@softbones.org \nSponsored in part by Alexion\, AstraZeneca Rare Disease. \nRegister now with this link!
URL:https://softbones.org/event/northeast-region-patient-meeting/
LOCATION:Honey Joe’s Cafe\, 5 Broad St Unit 2B\, Stamford\, CT 06901
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