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X-WR-CALDESC:Events for Soft Bones
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UID:7094-1664582400-1667260799@softbones.org
SUMMARY:Cannonball 5K Run\, Roll\, or Stroll
DESCRIPTION:Join us as we come together as an HPP community to raise global awareness of hypophosphatasia. \nWorld HPP Day is our chance as a community to spread awareness for this rare metabolic bone disease and bring everyone together. From patients living with HPP\, to caregivers\, families\, loved ones\, researchers and doctors\, everyone can get involved! We are stronger together\, and when we move\, we move as one! There is no correct form of movement\, so let’s see you run\, roll or stroll!  \nClick here to learn more and register
URL:https://softbones.org/event/cannonball-5k-run-roll-or-stroll/
LOCATION:Phoenix\, AZ
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DTSTART;TZID=America/New_York:20221022T110000
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UID:7093-1666436400-1666450800@softbones.org
SUMMARY:Southeast Region Meet Up
DESCRIPTION:Join Region Lead Kirsten Mitchell and Blynda Kellner for a conversation as we share stories about living with or caring for someone with HPP. We will have a speaker who will talk about holistic health for those with HPP as well as  OneSource Case Manager Dori Conwaywho will provide an overview of the OneSource program.  \nClick here to view the agenda and register \nSponsored in part by Alexion\, AstraZeneca Rare Disease.
URL:https://softbones.org/event/southeast-region-meet-up/
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