BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Soft Bones - ECPv6.15.20//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Soft Bones
X-ORIGINAL-URL:https://softbones.org
X-WR-CALDESC:Events for Soft Bones
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20210314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20211107T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20220313T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20221106T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221001
DTEND;VALUE=DATE:20221101
DTSTAMP:20260423T113207
CREATED:20221012T001806Z
LAST-MODIFIED:20221013T032441Z
UID:7094-1664582400-1667260799@softbones.org
SUMMARY:Cannonball 5K Run\, Roll\, or Stroll
DESCRIPTION:Join us as we come together as an HPP community to raise global awareness of hypophosphatasia. \nWorld HPP Day is our chance as a community to spread awareness for this rare metabolic bone disease and bring everyone together. From patients living with HPP\, to caregivers\, families\, loved ones\, researchers and doctors\, everyone can get involved! We are stronger together\, and when we move\, we move as one! There is no correct form of movement\, so let’s see you run\, roll or stroll!  \nClick here to learn more and register
URL:https://softbones.org/event/cannonball-5k-run-roll-or-stroll/
LOCATION:Phoenix\, AZ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221014T120000
DTEND;TZID=America/New_York:20221014T130000
DTSTAMP:20260423T113207
CREATED:20221011T061021Z
LAST-MODIFIED:20221013T032152Z
UID:7088-1665748800-1665752400@softbones.org
SUMMARY:HPP TeleECHO: Gene Therapy for HPP
DESCRIPTION:Virtual educational program for clinicians and researchers.  \nPresented by: Jose Luis Millan\, PhD  \nReach out to ECHO@SoftBones.org to get more information and to register. To view the full ECHO schedule click here.
URL:https://softbones.org/event/hpp-teleecho-gene-therapy-for-hpp/
LOCATION:Phoenix\, AZ
END:VEVENT
END:VCALENDAR