HPP Community

HPP Community

Soft Bones amplifies the voice and the needs of the HPP community. It is our goal to empower, educate and connect with the goal of a cure.

Bone Zone

Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.

HPP AND ME

Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.

Make A Difference.

Photo Gallery

Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.

Today

HPP TeleECHO: Eye Findings in Hypophosphatasia

Online

Join our HPP TeleECHO: Eye Findings in Hypophosphatasia on January 13th, 2023 at 12PM EST, presented by Mark S. Rollo, O.D.Dr. For more information, contact…

National Patient Meeting 2023

Phoenix, Arizona

Join us for our 2023 National Patient Meeting happening on February 17-18 in Phoenix, Arizona! This important event will bring the HPP community together to…

Soft Bones 15th Annual Golf Classic 2023

Somerset Hills Country Club 180 Mine Mount Rd, Bernardsville, New Jersey

Golf for a great cause! Join Soft Bones at the beautiful Somerset Hills Country Club in Bernardsville, NJ for the 15th Annual Golf Classic to…

Calendar of Events

We are continually creating and updating resources and events to provide patients, caregivers and the medical community with the latest information about HPP.