HPP Community
Soft Bones amplifies the voice and the needs of the HPP community. It is our goal to empower, educate and connect with the goal of a cure.
Bone Zone
Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.
HPP AND ME
Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.
Make A Difference.
Photo Gallery
Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.
Unmask HPP Webinar: Genetics and HPP
OnlineRegister Today For This Informative Webinar. Presenter: Dmitriy Niyazov, MD Are you navigating an HPP diagnosis? Whether you’re new to HPP or a long-time patient…
Unmask HPP Webinar: Living with HPP
OnlineRegister Today For This Informative Webinar. Presenter: Jacqui Kernaghan, PA- C, Preventative Medicine Are you navigating an HPP diagnosis? Whether you’re new to HPP or…
Denim & Diamonds
Harvest Hall, Chester, NJ 100 Rte 24, Chester, NJDenim & Diamonds: Soft Bones Fundraiser Join Soft Bones for a fundraiser filled with dancing, a live band, food, drinks and auction items. This is…
2nd Soft Bones International Scientific Meeting 2023
Bethesda, MDJoin Soft Bones at our 2023 Scientific Meeting on June 2-4, 2023.
Unmask HPP Webinar: Tips For Traveling With Your Medication
OnlineRegister Today For This Informative Webinar. Presenter: Gnanagurudasan Prakasam, MD, Pediatric Endocrinology Are you navigating an HPP diagnosis? Whether you’re new to HPP or a…
Soft Bones 15th Annual Golf Classic 2023
Somerset Hills Country Club 180 Mine Mount Rd, Bernardsville, New JerseyGolf for a great cause! Join Soft Bones at the beautiful Somerset Hills Country Club in Bernardsville, NJ for the 15th Annual Golf Classic to…
National Patient Meeting 2024
Great Wolf Lodge, Mason Ohio 2501 Great Wolf Dr, Mason, OHSAVE THE DATE for Soft Bones 2024 National Patient Meeting! Where: Great Wolf Lodge, Mason, OH When: July 12- 13, 2024 Registration and details…
Calendar of Events
We are continually creating and updating resources and events to provide patients, caregivers and the medical community with the latest information about HPP.
