HPP Community
Soft Bones amplifies the voice and the needs of the HPP community. It is our goal to empower, educate and connect with the goal of a cure.
Bone Zone
Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.
HPP AND ME
Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.
Make A Difference.
Photo Gallery
Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.
2023 Cannonball 5k Run, Roll, or Stroll
OnlineIt’s time to Run, Roll or Stroll! Registration for Soft Bones second annual Cannonball 5k Run, Roll or Stroll is open NOW! Register with the…
Soft Bones 15th Annual Golf Classic 2023
Somerset Hills Country Club 180 Mine Mount Rd, Bernardsville, New JerseyGolf for a great cause! Join Soft Bones at the beautiful Somerset Hills Country Club in Bernardsville, NJ for the 15th Annual Golf Classic to…
Region Lead Bi-Monthly Call
OnlineFOR SOFT BONES REGION LEADS ONLY: Join the Region Lead bi- monthly call on Thursday October 12th from 7-8 pm EST. For questions reach out…
Unmask HPP Educational Event: Does Hypophosphatasia(HPP) Play A Role In Your Life?
McCormick & Schmick's 711 Eastern Avenue, Baltimore, MD, United StatesRegister Today For This Informative In Person Event. Presenter: Eduardo Luna, MD Endocrinologist Are you curious about life changes and the support you have…
HPP AND ME Zoom Tutorial
OnlineSoft Bones will be hosting a HPP AND ME Zoom tutorial on Tuesday, October 17th, at 1:00 p.m. EDT. Learn more about the HPP community,…
Unmask HPP Webinar: Tips for Traveling with your Medication
OnlineRegister Today For This Informative Webinar. Presenter: Leila Chaychi, MD, Endocrinologist Are you navigating an HPP (hypophosphatasia) diagnosis? Whether you're new to HPP or…
Unmask HPP Educational Event: Does Hypophosphatasia(HPP) Play A Role In Your Life?
Seasons 52 2502 E Camelback Road Suite 140, Phoenix, AZRegister Today For This Informative In Person Event. Presenter: Eduardo Luna, MD Endocrinologist Are you curious about life changes and the support you have along…
World HPP Day
Phoenix, AZThis year we come together to make some noise about HPP! Let's share our stories to raise awareness now and change the future of HPP.
HPP AND ME Live Zoom Chat
OnlineJoin the HPP community in an HPP AND ME live chat on Monday, October 30th, 2023 at 8:00 p.m. EDT. Meet the faces behind the…
Unmask HPP Webinar: Living with HPP
OnlineRegister Today For This Informative Webinar. Presenter: Aristedes Maniatis, MD, FAAP, Pediatric Endocrinology Are you navigating an HPP (hypophosphatasia) diagnosis? Whether you're new to HPP…
Unmask HPP Webinar: Caring for Someone with HPP
OnlineRegister Today For This Informative Webinar. Presenter: Freda Hannafon, FNP-C, Endocrinology Are you navigating an HPP (hypophosphatasia) diagnosis? Whether you're new to HPP or a…
National Patient Meeting 2024
Great Wolf Lodge, Mason Ohio 2501 Great Wolf Dr, Mason, OH, United StatesSAVE THE DATE for Soft Bones 2024 National Patient Meeting! Where: Great Wolf Lodge, Mason, OH When: July 12- 13, 2024 Registration and details…
Calendar of Events
We are continually creating and updating resources and events to provide patients, caregivers and the medical community with the latest information about HPP.
