HPP Community

HPP Community

Soft Bones amplifies the voice and the needs of the HPP community. It is our goal to empower, educate and connect with the goal of a cure.

Bone Zone

Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.

HPP AND ME

Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.

Make A Difference.

Photo Gallery

Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.

Today

Unmask HPP Webinar: Genetics and HPP

Online

Register Today For This Informative Webinar. Presenter:  Dmitriy Niyazov, MD Are you navigating an HPP diagnosis? Whether you’re new to HPP or a long-time patient…

Unmask HPP Webinar: Living with HPP

Online

Register Today For This Informative Webinar. Presenter:  Jacqui Kernaghan, PA- C, Preventative Medicine Are you navigating an HPP diagnosis? Whether you’re new to HPP or…

Denim & Diamonds

Harvest Hall, Chester, NJ 100 Rte 24, Chester, NJ

Denim & Diamonds: Soft Bones Fundraiser Join Soft Bones for a fundraiser filled with dancing, a live band, food, drinks and auction items. This is…

Soft Bones 15th Annual Golf Classic 2023

Somerset Hills Country Club 180 Mine Mount Rd, Bernardsville, New Jersey

Golf for a great cause! Join Soft Bones at the beautiful Somerset Hills Country Club in Bernardsville, NJ for the 15th Annual Golf Classic to…

National Patient Meeting 2024

Great Wolf Lodge, Mason Ohio 2501 Great Wolf Dr, Mason, OH

SAVE THE DATE for Soft Bones 2024 National Patient Meeting! Where: Great Wolf Lodge, Mason, OH When: July 12- 13, 2024   Registration and details…

Calendar of Events

We are continually creating and updating resources and events to provide patients, caregivers and the medical community with the latest information about HPP.