HPP Community

HPP Community

Soft Bones amplifies the voice and the needs of the HPP community. It is our goal to empower, educate and connect with the goal of a cure.

Bone Zone

Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.

HPP AND ME

Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.

Make A Difference.

Photo Gallery

Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.

Meet Me Monday

Come meet the Soft Bones’ staff members, Region Leads, moderators, and volunteers that make our mission a reality.

Today

South Central Region Patient Meeting

Texas A&M College Station, TX

    South Central Region Meet-Up Opportunity  Please join Region Leads Cami Rush and Cassandra Self for a South Central meeting on Saturday, March 2,…

HPP AND ME Live Zoom Chat

Online

Register for your spot today! Join the HPP community in an HPP AND ME live chat on March 12, 2024, at 1:00 pm EST. Meet…

Denim & Diamonds – Save the Date

Harvest Hall, Chester, NJ 100 Rte 24, Chester, NJ, United States

Join us for Soft Bones Denim & Diamonds event taking place on May 18th, 2024 for a fun night of dancing, live music, food, drinks, auction…

2024 Soft Bones National Patient Meeting

Great Wolf Lodge, Mason Ohio 2501 Great Wolf Dr, Mason, OH, United States

Join us for our 2024 Soft Bones National Patient Meeting on July 12th–July 13th, 2024 in Mason, OH. This important event will bring together HPP…

Calendar of Events

We are continually creating and updating resources and events to provide patients, caregivers and the medical community with the latest information about HPP.