HPP Community

HPP Community

Soft Bones amplifies the voice and the needs of the HPP community. It is our goal to empower, educate and connect with the goal of a cure.

Bone Zone

Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.

HPP AND ME

Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.

Make A Difference.

Photo Gallery

Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.

Today

2023 Cannonball 5k Run, Roll, or Stroll

Online

It’s time to Run, Roll or Stroll! Registration for Soft Bones second annual Cannonball 5k Run, Roll or Stroll is open NOW! Register with the…

Soft Bones 15th Annual Golf Classic 2023

Somerset Hills Country Club 180 Mine Mount Rd, Bernardsville, New Jersey

Golf for a great cause! Join Soft Bones at the beautiful Somerset Hills Country Club in Bernardsville, NJ for the 15th Annual Golf Classic to…

Region Lead Bi-Monthly Call

Online

FOR SOFT BONES REGION LEADS ONLY: Join the Region Lead bi- monthly call on Thursday October 12th from 7-8 pm EST. For questions reach out…

HPP AND ME Zoom Tutorial

Online

Soft Bones will be hosting a HPP AND ME Zoom tutorial on Tuesday, October 17th, at 1:00 p.m. EDT. Learn more about the HPP community,…

World HPP Day

Phoenix, AZ

This year we come together to make some noise about HPP! Let's share our stories to raise awareness now and change the future of HPP.

HPP AND ME Live Zoom Chat

Online

Join the HPP community in an HPP AND ME live chat on Monday, October 30th, 2023 at 8:00 p.m. EDT. Meet the faces behind the…

Unmask HPP Webinar: Living with HPP

Online

Register Today For This Informative Webinar. Presenter: Aristedes Maniatis, MD, FAAP, Pediatric Endocrinology Are you navigating an HPP (hypophosphatasia) diagnosis?  Whether you're new to HPP…

Unmask HPP Webinar: Caring for Someone with HPP

Online

Register Today For This Informative Webinar. Presenter: Freda Hannafon, FNP-C, Endocrinology Are you navigating an HPP (hypophosphatasia) diagnosis?  Whether you're new to HPP or a…

National Patient Meeting 2024

Great Wolf Lodge, Mason Ohio 2501 Great Wolf Dr, Mason, OH, United States

SAVE THE DATE for Soft Bones 2024 National Patient Meeting! Where: Great Wolf Lodge, Mason, OH When: July 12- 13, 2024   Registration and details…

Calendar of Events

We are continually creating and updating resources and events to provide patients, caregivers and the medical community with the latest information about HPP.