Adult Hypophosphatasia: An Uncommon Bone Disease Hiding in Plain Sight – Presented by American Bone Health

On December 21, 2011 our daughter Clara B. was born; at the time we believed she was a beautiful healthy baby girl. Little did we…

This is me, Joann. Living with a rare disease. Hiding for years in my DNA. It snuck up on me in the prime of my…

When I was born in 1968, my parents assumed everything was fine. They took me home and being her 1st child, my mom thought everything…

WRITTEN BY JULIA C. If you sat in a class with me, there are a few things you might notice right away. I talk a…

Hello everyone, my name is Sharon T., and my husband Dave has hypophosphatasia (HPP). He and our family have paid a price in our HPP…